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Which advice would you give to someone who has just been diagnosed with Dupuytrens Contracture?

See some advice from people with experience in Dupuytrens Contracture to people who have just been diagnosed with Dupuytrens Contracture

Dupuytrens Contracture advice

Dupuytren's Contracture: Advice for Newly Diagnosed Individuals


Receiving a diagnosis of Dupuytren's Contracture can be overwhelming and raise numerous questions about the condition and its management. While it's important to consult with a healthcare professional for personalized advice, here are some general recommendations to consider:



1. Educate Yourself


Take the time to understand what Dupuytren's Contracture is and how it may affect you. Research reputable sources, such as medical websites or publications, to gain insights into the condition's causes, symptoms, progression, and available treatment options. This knowledge will empower you to make informed decisions about your healthcare.



2. Consult with a Specialist


Seek out a hand specialist or a healthcare professional experienced in treating Dupuytren's Contracture. They can provide a comprehensive evaluation of your condition, discuss potential treatment plans, and address any concerns you may have. A specialist will guide you through the available options and help determine the most suitable course of action for your specific case.



3. Monitor Progression


Keep track of any changes in your hand or fingers. Dupuytren's Contracture is characterized by the development of nodules or cords in the palm, which may eventually lead to finger contractures. Regularly assess the flexibility and range of motion in your hand, noting any limitations or worsening symptoms. This information will be valuable for your healthcare provider in determining the progression of the condition.



4. Lifestyle Modifications


While there is no definitive cure for Dupuytren's Contracture, certain lifestyle modifications may help manage the symptoms and slow down the progression of the disease:



  • Quit Smoking: Smoking has been linked to an increased risk and severity of Dupuytren's Contracture. Quitting smoking can potentially reduce the progression of the condition.

  • Exercise: Engage in regular hand exercises and stretching to maintain hand function and flexibility. Consult with a hand therapist or occupational therapist for specific exercises tailored to your needs.

  • Healthy Habits: Maintain a balanced diet, manage stress levels, and ensure sufficient rest and sleep. These factors contribute to overall well-being and may indirectly impact the progression of Dupuytren's Contracture.



5. Treatment Options


Discuss potential treatment options with your healthcare provider. The choice of treatment depends on the severity of your condition, the impact on hand function, and your personal preferences. Some common treatment approaches include:



  • Non-Surgical Options: In the early stages, non-surgical interventions such as hand therapy, splinting, or injections may be recommended to manage symptoms and slow down progression.

  • Surgical Interventions: For more advanced cases, surgical procedures like fasciectomy or fasciotomy may be necessary to release the contracted tissue and restore hand function. Your specialist will discuss the potential risks, benefits, and recovery process associated with surgery.



6. Emotional Support


Receiving a diagnosis of Dupuytren's Contracture can be emotionally challenging. Reach out to friends, family, or support groups to share your feelings and experiences. Connecting with others who have faced similar situations can provide valuable emotional support and help you navigate the journey ahead.



7. Regular Follow-ups


Stay proactive in managing your condition by scheduling regular follow-up appointments with your healthcare provider. These visits will allow for ongoing evaluation of your hand function, monitoring of disease progression, and adjustment of treatment plans if necessary.



Remember, every individual's experience with Dupuytren's Contracture is unique, and treatment plans may vary. Consult with a healthcare professional to receive personalized advice and guidance tailored to your specific needs.


Diseasemaps
2 answers
Monitor rate of growth, nature of growth and symptoms such as pain, itching and chord development.

Seek hand specialist / orthopaedic consultant advice of treatment

do a lot of reading as doctors are often ill-informed or dismiss certain treatments, or medical service will not treat the condition with certain techniques or specific drugs

Posted Sep 10, 2017 by Jim 4055

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Four years ago at age 58, I noticed slight dimpling in the palm of my left, non dominant hand, below the ring finger. Research lead me to think I had Dupuytrens given that I'm of Scottish decent. Early in 2012 I noticed a lump on the arch of my left ...
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finger swelled for months after a thorn injury - repeated antibiotics made no difference. Lump appeared in Palm , followed by lump in foot. I worked out I have Dupuytrens and lederhose disease. However I have to see multiple different consultants and...
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Diagnosed at age 50, but had the condition for at least a year or more before diagnosis.  After researching and finding on Facebook, I engaged with other people that had Dupuytren's and Ledderhose Disease. I found out about using Radiation Therapy a...

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