When I was 19, I started feeling muscle weekness and since my sister has LGMD as well I knew it was that! I wanted to leave my fiancé because I didn't want to put him through all that, he didn't want to leave me and stood by me, we got married...
4 people with Dysferlinopathy - Miyoshi Myopathy have taken the SF36 survey. Mean of Dysferlinopathy - Miyoshi Myopathy is 1619 points (45 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
