when I was 29 I had encephalitis. I was very ill and almost died. I trembled a lot during this period and had trouble walking and keeping my balance. I still do. It took a long time for me to be diagnosed with dystonia and it happened very unexpectedly. I was walking along a hospital corridor when a doctor stopped me. He asked if I was going to see him and I said no, I was just going for an xray. He told me to cancel it and go with him. He was the hospital's top neurologist and he was teaching students that day. I stood in front of them, totally humiliated and crying as they shot questions at me and the neurologist pointed out relevant symptoms, some of which I was unaware of. It then dawned on me that this man KNEW what I had been trying to discover for forty years. He was going to tell me what was wrong. So I stopped being so precious and feeling sorry for myself and cooperated fully. I was eventually told I had dystonia. I was not lazy. I was not pretending. I did not have parkinsons disease. Such a huge relief.
you may be wondering about the title. Because my head shakes so badly people who don't know me think I am shaking my head at them. This has led to some interesting and sometimes inconvenient situations like bus drivers leaving me standing at the bus stop.