There are 140 people in the Ebsteins Anomaly map

Ebsteins Anomaly symptoms

Which are the worst symptoms of Ebsteins Anomaly?

Prevalence of Ebsteins Anomaly

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Latest progress of Ebsteins Anomaly

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Is Ebsteins Anomaly contagious?

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Stories of Ebsteins Anomaly

STORY
Ebsteins Anomaly stories
Echo at 20 weeks gestation showed EA.  Did well at birth and as a baby. By 8 yo need ohs due to enlargement of RA and tiredness from regurgitation. Surgery at UVA unsuccessful. ☺️  4 years later ohs at Children's in Boston. Cone and maz...
Ebsteins Anomaly stories
BUENOS DIAS, SOY UN NIÑO MUY ACTIVO CON ANOMALIA DE EBSTEIN. VIVO EN BOGOTÁ, Y HASTA EL MOMENTO NO HE TENIDO NINGÚN SINTOMA. ESTOY EN CHEQUEOS CADA 6 MESES.   SI TIENEN ALGÚN AMIGO, FAMILIAR O UDTED MISMO TIENE ANOM...
Ebsteins Anomaly stories
Diagnosed before birth,  valve repair, ASD repair, VSD repair and atrial plication at 4 days old.  
Ebsteins Anomaly stories
born with severe EA and no surgical intervention to date. Suffered stroke in 2012from uncloused PFO; Helex repair to prevent future strokes. Fortunate enough to have survived this long; daughter born in 2014 with same Ebstein severity (no surgery to ...
Ebsteins Anomaly stories
Diagnosed around 12. Both Ebstiens and the WPW. Now have a trifecta of WPW (ablation that has not fully ceased tachycardia) Ebstien's (Severe regurgitation) and deformed heart (due to significant stress as a young adult)  Life hasn't been easy...

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Statistics of Ebsteins Anomaly

2 people with Ebsteins Anomaly have taken the SF36 survey. Mean of Ebsteins Anomaly is 593 points (16 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Ebsteins Anomaly