There are 141 people in the Ebsteins Anomaly map

Ebsteins Anomaly life expectancy

What is the life expectancy of someone with Ebsteins Anomaly?

ICD9 and ICD10 codes of Ebsteins Anomaly

ICD10 code of Ebsteins Anomaly and ICD9 code

Is Ebsteins Anomaly contagious?

Is Ebsteins Anomaly contagious?

Is Ebsteins Anomaly hereditary?

Is Ebsteins Anomaly hereditary?


Stories of Ebsteins Anomaly

STORY
Ebsteins Anomaly stories
Echo at 20 weeks gestation showed EA.  Did well at birth and as a baby. By 8 yo need ohs due to enlargement of RA and tiredness from regurgitation. Surgery at UVA unsuccessful. ☺️  4 years later ohs at Children's in Boston. Cone and maz...
Ebsteins Anomaly stories
BUENOS DIAS, SOY UN NIÑO MUY ACTIVO CON ANOMALIA DE EBSTEIN. VIVO EN BOGOTÁ, Y HASTA EL MOMENTO NO HE TENIDO NINGÚN SINTOMA. ESTOY EN CHEQUEOS CADA 6 MESES.   SI TIENEN ALGÚN AMIGO, FAMILIAR O UDTED MISMO TIENE ANOM...
Ebsteins Anomaly stories
born with severe EA and no surgical intervention to date. Suffered stroke in 2012from uncloused PFO; Helex repair to prevent future strokes. Fortunate enough to have survived this long; daughter born in 2014 with same Ebstein severity (no surgery to ...
Ebsteins Anomaly stories
Diagnosed before birth,  valve repair, ASD repair, VSD repair and atrial plication at 4 days old.  
Ebsteins Anomaly stories
I lived for 46 years without knowing that I had Ebstein's Anomaly. When I was little my Dr heard a sound that he diagnosed as Mitral Valve Prolaspe. He put it in my chart but never ordered an echo to verify this thoughts. It wasnt until I had several...

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Statistics of Ebsteins Anomaly

3 people with Ebsteins Anomaly have taken the SF36 survey. Mean of Ebsteins Anomaly is 1340 points (37 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Ebsteins Anomaly