A Ebsteins Anomaly story

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Diagnosed around 12. Both Ebstiens and the WPW.

Now have a trifecta of WPW (ablation that has not fully ceased tachycardia) Ebstien's (Severe regurgitation) and deformed heart (due to significant stress as a young adult) 

Life hasn't been easy, and I've often felt lost and unsupported. I've lost more than I can honestly put out there on the webs. I've been lucky to move to Canada, aside from the first few years, the last 6 have seen significant progress in my ability to manage, and to do more. I was expected to require surgery or serious intervetion by 30. Truth be told, I am past medications (according to the system here) and well in the threshold of surgery requirements, but I am coping exceptionally well. I attribute that to my partner (Who happens to be a Palliative Care Worker) and my friends.

It's scary to think that this condition could very abruptly end my life. I've struggled with the existensial part of it. Although I find I am exhausted more often than I like (I work full-time with a local Real Estate agency) I try and experience every day like it might be my last...it might be...