My son is born in 2000 and he was diagnosed HED when he was 9 months old. Pointy teeth, no hair, no sweating. He his now 15 and doing fine with who he is.
He know he is love for who he is, and he is a sweet, loving, caring, gamer guy!
My sister was born in 1988 with ectordermal dysplasia (hair/nails type).
Almost no hair in head and very few in other body parts and nails are very fragile.
We have run over all specialists in country and no cure appointed so far.
Joining this com...
9 people with Ectodermal Dysplasia have taken the SF36 survey. Mean of Ectodermal Dysplasia is 1996 points (55 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey