There are 207 people in the Ectodermal Dysplasia map

Living with Ectodermal Dysplasia

How to live with Ectodermal Dysplasia? Can you be happy living with Ec...

History of Ectodermal Dysplasia

What is the history of Ectodermal Dysplasia?

Prevalence of Ectodermal Dysplasia

What is the prevalence of Ectodermal Dysplasia?

Ectodermal Dysplasia diet

Is there a diet which improves the quality of life of people with Ect...

Stories of Ectodermal Dysplasia

Ectodermal Dysplasia stories
I have a type of ED called EEC
Ectodermal Dysplasia stories
I'm the mother of 7 year old twin boys wit ectodermal dysplasia 
Ectodermal Dysplasia stories
My son is born in 2000 and he was diagnosed HED when he was 9 months old.  Pointy teeth, no hair, no sweating.  He his now 15 and doing fine with who he is. He know he is love for who he is, and he is a sweet, loving, caring, gamer guy! &...
Ectodermal Dysplasia stories
My sister was born in 1988 with ectordermal dysplasia (hair/nails type). Almost no hair in head and very few in other body parts and nails are very fragile. We have run over all specialists in country and no cure appointed so far. Joining this com...
Ectodermal Dysplasia stories
my 4 year old grandson has h.e.d.

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Ectodermal Dysplasia forum


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Statistics of Ectodermal Dysplasia

9 people with Ectodermal Dysplasia have taken the SF36 survey. Mean of Ectodermal Dysplasia is 1996 points (55 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Ectodermal Dysplasia