Stories of Ectodermal Dysplasia

Ectodermal Dysplasia stories
i have 4 children and my 2 eldest have ectrodrymal dysplasia, my daughter has just got pointed teeth but all hers have appeared, they will file then down when her adult teeth are in. My son is 11 and he only ever had 6 teeth, he has a bottom set of d...
Ectodermal Dysplasia stories
I have a type of ED called EEC
Ectodermal Dysplasia stories
My daughter Imi (rhymes with Jimmy) has a genetic disorder called Ectodermal Dysplasia. It affects the skin, teeth and nails. For her it has resulted in neuroapthy. She has burning in her feet and at her last visit with the neurologist she showed a l...
Ectodermal Dysplasia stories
I'm the mother of 7 year old twin boys wit ectodermal dysplasia 
Ectodermal Dysplasia stories
My son is born in 2000 and he was diagnosed HED when he was 9 months old.  Pointy teeth, no hair, no sweating.  He his now 15 and doing fine with who he is. He know he is love for who he is, and he is a sweet, loving, caring, gamer guy! &...

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Statistics of Ectodermal Dysplasia

9 people with Ectodermal Dysplasia have taken the SF36 survey. Mean of Ectodermal Dysplasia is 1996 points (55 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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