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What is the life expectancy of someone with Edwards syndrome?

Life expectancy of people with Edwards syndrome and recent progresses and researches in Edwards syndrome

Edwards syndrome life expectancy

Edwards syndrome, also known as Trisomy 18, is a genetic disorder caused by the presence of an extra copy of chromosome 18. It is associated with severe developmental delays and multiple physical abnormalities. Unfortunately, the prognosis for individuals with Edwards syndrome is generally poor. Most affected babies do not survive beyond the first year of life. The condition often leads to significant medical complications, including heart defects and organ malformations, which contribute to the reduced life expectancy. However, it is important to note that each case is unique, and some individuals with Edwards syndrome may live longer with appropriate medical care and support.


Life expectancy for people with Edwards syndrome is very low. Ninety percent of patients do not reach one year old, and the median of survival is less than one month. Some exceptional cases have a better life expectancy and may reach adolescence. Life expectancy is higher in girls with Edwards syndrome than in boys and is also higher in non-white races.

The main causes of death are central apneas and pneumonia. Better clinical care and care for the child may be likely to improve their lifespan, but life expectancy depends primarily on the severity of each case and the systems affected.
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Edwards syndrome life expectancy

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Stories of Edwards syndrome

EDWARDS SYNDROME STORIES
Edwards syndrome stories
My daughter Lauren was diagnosed with t18 at 22 weeks.After a detailed scan then an amino.Drs advised Lauren"was not compatible with life"and to terminate pregnancy.Wee had over that weekend to decide.So it was either take tablets and come back to ho...

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