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When my headaches are severe, Treximet is a life saver! It's a migraine med that my Neurologist said seems to work on Chiari headaches.
by Susan G
Cromolyn
by Julie Calvert
Mindfulness
by Angelica
Doctors that believe me.
by Fey
Chiari decompression surgery
by Anonymous
Magnesium
by Jennifer Sanders
My son who has become my full time carer after my marriage collapsed. He put his own life on hold to do so, he is only 22
by Lise Gerrard
Physical therapy, daily exercise
by Janel Price
Qigong
by Toni Rakestraw
Pacing myself
by Terrianne
avoiding most solid food and making vitamix smoothies
by Bryn Prough
Getting GJ feeding tube a year and a half ago
by Rachael Knie
Fentanyl gel patches(Activas brand), Oxycondone, Promethazine, VALUIM, Topamax, hydroxizine, Soma, Adderall, Norflex, Dilaudid
by Brooke
Amitriptyline was the first medication that really helped my bladder pain.
by Mary Walsh
Lots of sleep and pain relief.
by Lauren Curtis
LOTS of rest
by Mindy
My support group
by Lacie Walker
find a good g.p who is prepared to help find the correct specialist
by Caroline towler
Hot baths (not too hot though)
by Abigail
Reeducação postural, fisioterapia e exercícios para fortalecimento musculo-esquelético
by Desiree Novaes Pimentel
Keep fighting for you diagnosis,even if your gp doesn't belive you have an invisible and rare illness.
by Gemma ballantyne
Conhecer meus limites
by Sarah
Alimentação
by João Sequeira
corect diagnosis :)
by marianne mcnally
Garder le moral quoi qu'il arrive
by Sandrine
Knowing we are not alone
by Diane Taylor
Going to see an Osteopath regularly
by Holly Stringer
My wheelchair and e-fix wheels help me go out again
by Becky
heat patche
by Louise Dodd
Love of my husband and son helps me to not giving up
by Kaya
Having a dr that listened and connected all my symptoms
by Shini
keeping positive
by Sophie
My pets
by Vikki
Support from other people who share your condition
by Elaine Taylor
2 ans de levocarnil - pour la fatigue
by esperance
Asking advice
by Rebecca
taking things slow
by Anna Mai Nattestad Joensen
Sessões de osteopatia e pilates
by Marcia Ribeiro Cavalcante
Getting a formal diagnosis for EDS and all my comorbidities
by Helen Butcher
Finding others for support
by Kristen
Crutches * wheelchair * splints *braces * my pain melds changed my life
by N C
Resting between every activity
by Marie
Eliminating gluten reduces my pain level
by Gamble
Minimal drugs
by Heather
2 tramadol every night before bed. Let's me sleep and my body rests.
by Kathy
Holistic chiropractor
by Jenn
My kids
by
Learning and sharing from people on sites like EDS.org
by Amy A
Pain pills
by Audrey Holdread
Pilates
by Stephanie