Working helps me keep mobile
Plenty of sleep
Where I place the focus.. I will not be cured of thinking about everything thats wrong, but I'd feel better if I remember what I still can - and not what I once could
My dog
If doctors knew and understood
A massage a week from a Japanese Reiki practitioner.
Drink plenty of fluids (with sodium/salt)
Learning as much as possible about my illnesses so I can advocate for myself.
REST
knitting and being creative
Taking antihistimes
Knowing what I have
Being heard and treated like a human rather than a lab rat
My wheelchair helps me to move again. I love my wheels.
When tings hurt, I'll stop
Getting my vitamin levels checked and taking the vitamins I'm low on.
Finding relaxing non strenuous activities to occupy my time. I started a custom artwork company and play computer games.
My Invacare Colibri scooter.
Keeping busy
Steady strength building exercise
Seeing boundaries, as an autistic woman most of them have been eroded, finding your own limits and needs again is hard but life is easier once you set them
My medical alert service dog, she lets me know before something happens and it give me enough time to get my meds and sit down.
Support from my partner and family
Being my own advocate!
Plexus pink Drink helped with a lot of my pain
Living in a first floor apartment
Staying on a clean diet, vitamin d3 n vitamin b prescription defo made a difference
My kids that remind me life is worth living
Tramadol, meloxicam
pain management
Doctors and specialist need to learn more about VEDS
Being in nature
el agua como parte fundamental en mi vida el agua también se encuentra en la linfa, un fluido que forma parte del sistema inmunitario, que nos ayuda a luchar contra las enfermedades.
REST
Accepting the use of mobility aids (cane, wheelchair, etc)
One day at a time
light exercise
Healthy food, fruits especially
Saber que no soy la única y que mis dolores no son mentira y que puedo ayudar a otros
Finding a doctor knowledgeable about mast cell disorders
Mi fe en Dios y la fe en mi misma
Finding the right doctor for me.
Making myself walk every day
My husband bringing me Starbucks in the morning
Decreasing my stress level.
Biking with an old fashioned cruiser bike
Cranio Sacral Therapy helps!
Seeing others perserve and fight and having music that carries my mood forward like "The Fight Song"
Finding a team of doctors willing to learn
Alimentación sana