I 'm sick since i was 6 ans diagnostic came 10 years later. 10 years of wrong medications, useless surgeries and today at 30 i can't barely move. It seems terrible and it's really sucks and painfull, but life gave me a beautiful son and a lovely husband who makes me feel stronger, and even if sometimes it's hard to keep living, i keep fighting pain, exhaustion and failure because of them. I do not know if I can go on like that and I know that a day will come when I should rest and my family will have to continue to live without me, so i appreciate every second of them, and i will always cherish the moment spend with.
For all the people who are sick and lost right now: don't listen doctors too much, listen to your body and live your life as you can ! Don't let us down, don't give up! Oh and try meditation, it's help too take a perpective.