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Celebrities with Ehlers Danlos

What famous people have Ehlers Danlos? Find out which celebrities, athletes or public figures have Ehlers Danlos.

Celebrities with Ehlers Danlos

Ehlers-Danlos Syndrome (EDS) is a group of genetic disorders that affect the connective tissues in the body. It is characterized by joint hypermobility, skin hyperextensibility, and tissue fragility. While EDS is a relatively rare condition, there are several celebrities who have been open about their diagnosis and have used their platform to raise awareness about the syndrome.



Celebrities with Ehlers Danlos Syndrome:



Lena Dunham:


Lena Dunham, the creator and star of the hit TV series "Girls," has been vocal about her struggles with EDS. She has shared her experiences with chronic pain and the challenges of living with the condition. Dunham has used her platform to advocate for better healthcare and support for individuals with EDS.



Jameela Jamil:


Jameela Jamil, known for her role in "The Good Place," has also been diagnosed with EDS. She has been open about her journey with the condition, discussing the impact it has had on her physical and mental health. Jamil has used her platform to promote body positivity and challenge societal beauty standards.



Sia:


The renowned singer-songwriter Sia has revealed that she has EDS. While she is known for her captivating performances, Sia has also faced numerous health challenges due to the condition. Despite this, she continues to create music and inspire others with her resilience.



Cher:


Cher, the iconic singer and actress, has also been reported to have EDS. Although she has not spoken extensively about her diagnosis, there have been speculations about her struggles with chronic pain and joint issues, which are common symptoms of EDS.



Other notable mentions:


While not confirmed by the individuals themselves, there have been rumors and reports suggesting that other celebrities may have EDS. These include "Game of Thrones" actress Gwendoline Christie and singer-songwriter Sinead O'Connor. However, it is important to note that these reports are not officially confirmed.



Raising Awareness and Inspiring Others:



These celebrities, along with many others who may not be in the spotlight, play a crucial role in raising awareness about Ehlers-Danlos Syndrome. By sharing their personal experiences and challenges, they help to shed light on the condition and provide support to those who may be going through similar struggles.



It is important to remember that EDS affects individuals differently, and each person's experience with the condition is unique. While some may face severe symptoms and limitations, others may have milder manifestations. Regardless of the severity, EDS can have a significant impact on an individual's quality of life.



Through their openness and advocacy, these celebrities contribute to the ongoing efforts to improve understanding, research, and treatment options for Ehlers-Danlos Syndrome. They inspire others to seek proper diagnosis, treatment, and support, while also fostering a sense of community among those affected by the condition.



If you suspect that you or someone you know may have EDS, it is important to consult with a healthcare professional for an accurate diagnosis and appropriate management. Early detection and intervention can help individuals with EDS lead fulfilling lives and minimize potential complications.



By highlighting the experiences of celebrities with EDS, we can continue to raise awareness, reduce stigma, and support those living with this challenging condition.


Diseasemaps
6 answers
Cherylee Houston, actress on Coronation Street
Niccolò Paganini, violinist
Many people believe Houdini had EDS, and that hypermobility would have allowed many of his tricks.

Posted Jan 14, 2018 by stairphobe 3070
Gary turner
95% of circus contortionists

Posted Sep 29, 2019 by Amy 13500
Sia, a famous singer

Yvie Oddly, a drag queen & winner of RuPaul’s Drag Race season 11

Baroness Nicola Blackwood of the UK

Sophie Hulme, British fashion designer

Vanessa Wallis, para athlete who won gold for shot put at the World Para Athletics European Championship

Marinda Davis, professional choreographer, star of “My Last Days” docu-series

Annie Segarra, Latinx, queer, and disability advocate

Kitty Richardson, English singer & songwriter

Posted Mar 11, 2020 by MegTheMariner 1870
I know actress Jameela Jamil has it.

Posted May 12, 2020 by Alex 3551
J F Kennedy and several others but that information would be private but it is suspected that several other have had it

Posted Nov 19, 2021 by NuNu 2550

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Stories of Ehlers Danlos

EHLERS DANLOS STORIES
Ehlers Danlos stories
Eu nasci com Síndrome de Ehlers-Danlos, afinal a Síndrome de Ehlers-Danlos é uma doença genética. Eu descobri que tinha Síndrome de Ehlers-Danlos aos 45 anos, por acaso. Vendo uma apresentação sobre Score de Beighton (método de avaliaçã...
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I suffered my entire life with issues and signs of Hypermobile type Ehlers-Danlos Syndrome, including extreme flexbility as a child that I "grew out of" in my young adulthood, slowlyl stiffening with age and early onset arthritis. Like too many, doct...
Ehlers Danlos stories
Lost all my friends all I know is chronic pain, 29 years has passed in a blink of an eye. I am lonely depressed and given up on by doctors who just label me and close the door. Stick me on meds and shut me up. I have degeneration in my spine 3 hernia...
Ehlers Danlos stories
I have always been sick all my life, not knowing why. When I started taking my BP more frequently, I realized alot of my symptoms were BP related, thus since been dx with dysautonomia, due to EDS. Before this time, I had pursued answers, with many cl...
Ehlers Danlos stories
I'm 54 years old and have had to learn to "just live with it". Stretchy skin and bendy joints have the pain in my life. My skin has been so thin that what would be a bruse for a normal person was a laceration for me. My knees are a wreck. My body hur...

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Ehlers Danlos forum

EHLERS DANLOS FORUM
Ehlers Danlos forum
We were in a car accident several months ago. Before that, I was hypermobile, but not as badly as I am now. Could the trauma of the accident trigger more issues with my connective tissue overall? For example, even though my feet/legs were uninjured, ...
Ehlers Danlos forum
So in the past 2-3 months i have been doing acupunture but after wards im in so much pain to wear my doctor puts the needles, does this happen to you?
Ehlers Danlos forum
The doctor has recommended exercise and physiotherapy to strengthen the muscles of my son and, then, protect his joints... anybody can advise in what kind of exercises or sport? I thin swimming may be the best option… Many thanks!
Ehlers Danlos forum
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