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Ehlers Danlos diet. Is there a diet which improves the quality of life of people with Ehlers Danlos?

Are you aware of a diet that can improve the quality of life of people with Ehlers Danlos? Is there a diet that is suggested to avoid when having Ehlers Danlos? See if there is a diet that can improve the quality of life of people with Ehlers Danlos, recommended and to avoid food when having Ehlers Danlos

Ehlers Danlos diet

Ehlers Danlos Diet: Improving Quality of Life


Ehlers Danlos Syndrome (EDS) is a group of genetic disorders that affect the connective tissues in the body. These disorders can cause a wide range of symptoms, including joint hypermobility, skin fragility, and chronic pain. While there is no specific diet that can cure or treat EDS, adopting a healthy and balanced eating plan can help improve the overall quality of life for individuals with EDS.



The Importance of a Balanced Diet


A balanced diet is crucial for everyone, but it holds particular significance for individuals with EDS. Proper nutrition can support overall health, strengthen the immune system, and promote optimal functioning of the body. It is important to focus on consuming a variety of nutrient-dense foods to ensure that the body receives all the essential vitamins, minerals, and macronutrients it needs.



Key Nutrients for EDS


While there is no specific diet tailored exclusively for EDS, certain nutrients can play a vital role in managing symptoms and supporting overall health:



  • Collagen: Collagen is a protein that forms the building blocks of connective tissues. Including collagen-rich foods such as bone broth, fish, lean meats, and poultry can help support the health and strength of connective tissues.

  • Vitamin C: Vitamin C is essential for collagen synthesis. Citrus fruits, berries, kiwi, bell peppers, and leafy greens are excellent sources of vitamin C.

  • Omega-3 Fatty Acids: These healthy fats have anti-inflammatory properties and can help reduce joint pain and inflammation. Include fatty fish like salmon, mackerel, and sardines, as well as flaxseeds, chia seeds, and walnuts in your diet.

  • Antioxidants: Antioxidants help protect the body from oxidative stress and inflammation. Colorful fruits and vegetables, such as berries, spinach, kale, and sweet potatoes, are rich in antioxidants.

  • Protein: Adequate protein intake is important for muscle strength and repair. Include lean meats, poultry, fish, legumes, nuts, and seeds in your diet.

  • Calcium and Vitamin D: These nutrients are essential for maintaining bone health. Dairy products, fortified plant-based milks, leafy greens, and sunlight exposure are good sources of calcium and vitamin D.



Hydration and EDS


Proper hydration is essential for everyone, but it can be particularly beneficial for individuals with EDS. Staying hydrated helps maintain joint lubrication, supports digestion, and promotes overall well-being. Aim to drink an adequate amount of water throughout the day and consider incorporating hydrating foods such as fruits and vegetables with high water content into your diet.



Individualized Approach


It is important to note that EDS symptoms can vary greatly among individuals. Therefore, it is recommended to work with a healthcare professional, such as a registered dietitian, to develop an individualized eating plan that suits your specific needs and addresses any additional health concerns you may have.



Other Considerations


In addition to a balanced diet, individuals with EDS may benefit from certain lifestyle modifications:



  • Exercise: Engaging in appropriate physical activity, such as low-impact exercises and strengthening exercises, can help improve joint stability and overall muscle strength.

  • Posture and Body Mechanics: Maintaining good posture and practicing proper body mechanics can help reduce strain on joints and minimize the risk of injury.

  • Stress Management: Stress can exacerbate symptoms in individuals with EDS. Incorporating stress management techniques, such as mindfulness, relaxation exercises, and engaging in activities you enjoy, can help improve overall well-being.



Disclaimer: It is important to consult with a healthcare professional before making any significant changes to your diet or lifestyle, especially if you have a medical condition like Ehlers Danlos Syndrome.


Diseasemaps
26 answers
There is no known diet to avoid with EDS, although some have said they feel better after eating clean.

Posted Apr 11, 2017 by Montana 1670
Diet does not affect EDS, but there are diets that help certain secondary conditions, like MCAS or gastroparesis.

Posted May 10, 2017 by stairphobe 3070
Not really, no. It really depends on the type and what diseases they have. EDS is a syndrome that may cause other diseases. There are EDSers that are allergic to gluten, to lactose, to dairy, etc, etc. It depends on each person. There are EDSers who get extremely bloated when they eat gluten, or eat kiwi, or bananas. Each person has to adjust their diet to their problems and try to use different diets to see if you are allergic or react badly to some food/medicine etc

Posted May 25, 2017 by Maria 2051
Many people use the Cusack Protocol for supplementation. I am vegetarian and gluten free which greatly has helped my symptoms.
Diet should be discussed with a nutritionist who is knowledgeable in EDS

Posted May 26, 2017 by Stephanie 800
No easy fix in a diet. Eat healthy to prevent putting oon to much weight stressing your joints

Posted May 27, 2017 by Jude 2050
I have read sticking to a anti-inflammatory diet helps decrease symptoms.I typically stick to a gluten free one.

Posted May 27, 2017 by Ashley 950
There is no known diet proven to help with eds as it's a genetic disease that gives us defective connective tissue

Posted May 28, 2017 by Celi 2000
A diet that lowers overall inflammation in the body can help with pain and digestive issues common in EDS. The Autoimmune Protocol (AIP) is the best known.

Posted May 31, 2017 by KathrynOConnor 2200
No

Posted Jun 4, 2017 by Richelle 1750
No there is no diet that helps with EDS or the effects from it

Posted Sep 27, 2017 by Lbond94 4100
I haven't found a diet that improves our health

Posted Oct 6, 2017 by Sasha 2050
None that have found to work

Posted Oct 7, 2017 by Sharon 7050
Again, every person is unique. For me, with my specific genes, avoiding soy, processed, high histamine and spicy foods, supplementing magnesium and salt, eating several smaller portioned meals and staying well hydrated have helped.

Posted Oct 25, 2017 by Dolores 3050
Not a diet but a way of eating should happen. Any foods that oxygenate the blood, reduce sugar and if you can cut out all unnatural sugars, if it is white, don't eat it, if wheat and barley and dairy affect your gut, don't eat them or eat them in small quantities, increase your intake of natural foods that are green, orange, red, Vitamin A, C, D, B6, and Magnesium are all important and iron..... all should first come from natural sources. If defficient in any (find out) and use natural sources recomended by a nutritionist or dietician with knowledge of Autonomic Dysfunction and GI issues typical of EDS'ers. High histamine foods are probably not a good idea and all processed is not a good idea.

Keep it simple
no white
high colour
processed is out
alcohol is out
reduce histamine foods and any foods that you react to negatively
keep meals small
fully digest from start to finish (meaning chew your food thouroughly as this is the start of the digestive process)
Keep meals small
and increase your gut flora , especially when taking antibiotics

Become conscious of what your body tells you when you put something in your mouth. If you react negatively (and this can be days later) then remove that food or do a trial and error with it.

Eat simply, grow your own if you can, flavour foods with herbs and spices. learn to cook, and dessert is not necessary, eat 6 to 8 times a day instead of three meals and snacks.
Protein
Protein
Protein
Potassium
Potassium
Potassium
Can't stress enough that these are vitally important in the way you eat - your muscles depend on it
You do not necessarily have to eat meat to get protein either.
It takes time to convert your kitchen and pantry to a 'way of eating' . Once it is converted and it can take 6 months to do this, the 'extra' expense is not extra and can actually be cheaper than the quick and easy.
Plan and take the time to fuel your body properly. Listen to your bodies signals, and learn to love what nature provides to us.

Posted May 11, 2018 by Izzy 600
Si .llevar una dieta saludable ayuda.hay q evitar los dulces y las harinas

Posted Jul 6, 2018 by Estefania 1150
We have found avoiding preservatives, additives of any kind including vitamins and supplements to food, dyes, etc my daughter does much better. When we travel, she fairs much better overseas.

Posted Mar 21, 2019 by pianocat_61 1400
There is not a known effective diet and collagen supplements do not do anything

Posted Sep 29, 2019 by Amy 13500
EDS can come with some gastrointestinal issues. I myself get heartburn when I'm stressed or from very acidic food like tomato based dishes. If it upsets your stomach, consider avoiding it. Many people with EDS also have POTS, and should make sure they're getting enough salt.

Posted May 12, 2020 by Alex 3551
Paleo or vegan I keep Keto

Posted Nov 19, 2021 by NuNu 2550
Diets may help however there is no one set

Posted Nov 28, 2022 by Taiy rinaldi-bull 600
Translated from spanish Improve translation
It depends on each person, to my touch a diet high in fiber, low in sugar and without a lot of flour

Posted Mar 25, 2017 by Paula Lopez 1151
Translated from french Improve translation
A lot of Sed also suffer from a syndrome of activation mastocitaire. so in effect a special diet can be adapted.
Personally a stop of dairy products and a decrease of the gluten has allowed me a better transit

Posted Aug 16, 2017 by Apolline 1205
Translated from french Improve translation
Unfortunately not.
There are, however, to avoid foods potentially "inflammatory" (see google)

Posted Aug 17, 2017 by Sandrine 1790
Translated from french Improve translation
The sed is not controllable like diabetes or other. Food-based vitamins C and omega can be a good alternative to overcome the fatigue and some disorders of neurotransmission. Given the digestive problems, I think that a simple balanced and varied diet is enough. Of course, the sedentary lifestyle is more common, therefore, limit the fat and sugar in big amount.

Posted Aug 30, 2017 by Ehos 1050
Translated from portuguese Improve translation
I think not. By the fact you need greater stability to the muscle to give more support to the joints. We advise a regular intake of proteins and healthy foods. To not let other diseases settle in the body.

Posted Aug 30, 2017 by Kayla Rarine 2000

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