Is it advisable to do exercise when affected by Ehlers Danlos? Which activities would you suggest and how intense should they be?

Ehlers-Danlos syndrome (EDS) is a group of genetic disorders that affect the connective tissues in the body. These tissues provide support and structure to the joints, skin, blood vessels, and other organs. EDS can cause various symptoms, including joint hypermobility, skin fragility, and chronic pain. If you have been diagnosed with EDS, it is important to approach exercise with caution and seek guidance from healthcare professionals.

Exercise can be beneficial for individuals with EDS, as it can help improve muscle strength, joint stability, and overall physical function. However, it is crucial to choose the right activities and modify them to suit your individual needs and limitations. Here are some recommendations for exercise with EDS:

1. Low-impact aerobic exercises: Engaging in activities that promote cardiovascular fitness without putting excessive stress on the joints is generally advisable. This can include walking, swimming, cycling, or using an elliptical machine. Start with shorter durations and gradually increase the intensity and duration as tolerated.

2. Strength training: Building muscle strength can help stabilize the joints and reduce the risk of injury. Focus on exercises that target major muscle groups, such as squats, lunges, and modified push-ups. It is important to start with light weights or resistance bands and gradually progress to heavier weights as your strength improves.

3. Core stabilization exercises: Strengthening the core muscles can provide additional support to the spine and improve overall stability. Exercises like planks, bridges, and gentle Pilates movements can be beneficial. Ensure proper form and avoid any movements that cause pain or discomfort.

4. Flexibility exercises: Stretching can help improve joint range of motion and reduce muscle tightness. However, individuals with EDS should be cautious not to overstretch or push beyond their comfortable range. Gentle stretching exercises, such as yoga or tai chi, can be beneficial. Avoid extreme positions and listen to your body's signals.

5. Balance and proprioception exercises: EDS can affect balance and coordination, so incorporating exercises that challenge these aspects can be helpful. This can include activities like standing on one leg, using balance boards, or practicing yoga poses that improve stability.

6. Postural exercises: EDS can contribute to poor posture and spinal alignment. Specific exercises targeting postural muscles, such as shoulder retractions, scapular squeezes, and gentle neck stretches, can help improve posture and reduce associated discomfort.

It is crucial to approach exercise with caution and listen to your body. Individuals with EDS may have varying degrees of joint instability and pain, so it is important to adapt exercises to your specific needs. Here are some additional considerations:

- Seek guidance from healthcare professionals: Consult with a healthcare provider, such as a physical therapist or exercise physiologist, who has experience working with individuals with EDS. They can provide personalized recommendations and guidance on exercise modifications.

- Start slowly and progress gradually: Begin with low-intensity exercises and gradually increase the duration and intensity as tolerated. This allows your body to adapt and reduces the risk of overexertion or injury.

- Listen to your body: Pay attention to any pain, discomfort, or excessive fatigue during or after exercise. If an activity causes significant pain or joint instability, modify or avoid it. It is important to find a balance between challenging yourself and avoiding excessive strain.

- Use supportive equipment: Depending on your specific needs, using supportive equipment such as braces, orthotics, or assistive devices may be beneficial during exercise. These can provide additional joint stability and reduce the risk of injury.

- Stay hydrated and manage symptoms: EDS can be associated with symptoms like fatigue, dizziness, and heat intolerance. Ensure proper hydration, take breaks as needed, and manage any symptoms that may arise during exercise.

- Consider working with a professional: If you are unsure about how to safely and effectively exercise with EDS, consider working with a qualified exercise professional who can provide guidance and support tailored to your specific needs.

Remember, every individual with EDS is unique, and what works for one person may not work for another. It is important to listen to your body, seek professional guidance, and make modifications as necessary. By approaching exercise with caution and finding the right balance, you can reap the benefits of physical activity while minimizing the risk of injury or exacerbating symptoms.