22

Ehlers Danlos prognosis

What is the prognosis if you have Ehlers Danlos? Quality of life, limitations and expectatios of someone with Ehlers Danlos.

Ehlers Danlos prognosis

Ehlers-Danlos syndrome (EDS) is a group of genetic disorders that affect the connective tissues in the body. These tissues provide support and structure to various organs, joints, and blood vessels. EDS is characterized by a defect in the production, processing, or structure of collagen, which is a key component of connective tissues.



The prognosis for individuals with EDS can vary widely depending on the specific type and severity of the condition. There are several subtypes of EDS, each with its own unique features and complications. Some forms of EDS, such as the vascular type, can be life-threatening due to the increased risk of organ and blood vessel rupture.



Early diagnosis and appropriate management are crucial in improving the prognosis for individuals with EDS. While there is currently no cure for EDS, treatment focuses on managing symptoms, preventing complications, and improving quality of life.



Medical interventions may include physical therapy to strengthen muscles and improve joint stability, pain management strategies, and orthopedic interventions to address joint dislocations or instability. In some cases, surgical interventions may be necessary to repair or stabilize affected joints or blood vessels.



Lifestyle modifications can also play a significant role in managing EDS. This may involve avoiding activities that put excessive strain on the joints, maintaining a healthy weight, and practicing good posture and body mechanics. Additionally, individuals with EDS may benefit from assistive devices such as braces or splints to support weakened joints.



Regular monitoring and follow-up with healthcare professionals specializing in EDS is essential to detect and address any potential complications early on. Genetic counseling may also be recommended for individuals with EDS and their families to understand the inheritance pattern and assess the risk of passing the condition to future generations.



While EDS can present significant challenges, with proper management and support, individuals with the condition can lead fulfilling lives. It is important to consult with healthcare professionals for personalized advice and guidance based on the specific subtype and severity of EDS.


Diseasemaps
7 answers
People with EDS generally have a normal life expectancy, except for vascular EDS (which is around 48 years). People with EDS can become quite severely disabled or they can be virtually asymptomatic.

Posted Jan 14, 2018 by stairphobe 3070
Abraham Lincoln us President not 100% proof, but the Doctor's says that is a very good chance of he hadde Ehlers-Danlos Syndrom.

Posted May 28, 2018 by T_T_T© 100
It depends on the type of Ehlers Danlos that you have

Posted Sep 29, 2019 by Amy 13500
The prognosis depends on the type of Ehlers-Danlos syndrome and the individual. Life expectancy can be shortened for those with the Vascular Ehlers-Danlos syndrome due to the possibility of organ and vessel rupture. Life expectancy is usually not affected in the other types. There can be a wide or narrow range of severity within a family, but each person’s case of Ehlers-Danlos syndrome will be unique. While there is no cure for the Ehlers-Danlos syndromes, there is treatment for symptoms, and there are preventative measures that are helpful for most.

Answer is from the Ehlers-Danlos Society’s website.

Posted Mar 11, 2020 by MegTheMariner 1870
EDS is degenerative. How severe and how quickly varies based on genetics and how you treat your joints. My joints have gotten more painful and weaker as time goes on. There is no reason for me to expect this to improve, but I can try to avoid overextending myself and making it worse faster.

Posted May 12, 2020 by Alex 3551
On the website you medicine health.com they say patients with a classical and hypermobility forms of ehlers-danlos Syndrome have a normal life expectancy about 80% of patients with vascular ehlers-danlos syndrome will experience a major health event by age 40 in the life expectancy is shortened with an average age of death of 48 years I also found an answer to this question what is the prognosis of EDS say people affected by vascular EDS have a median life expectancy of 48 years and many will have a major event by age 40 the lifespan of people with the kyphoscoliosis form is also decreased largely due to the vascular involvement in the potential for restrictive lung disease

Posted Nov 19, 2021 by NuNu 2550

Ehlers Danlos prognosis

Ehlers Danlos life expectancy

What is the life expectancy of someone with Ehlers Danlos?

23 answers
Celebrities with Ehlers Danlos

Celebrities with Ehlers Danlos

6 answers
Is Ehlers Danlos hereditary?

Is Ehlers Danlos hereditary?

20 answers
Is Ehlers Danlos contagious?

Is Ehlers Danlos contagious?

21 answers
Natural treatment of Ehlers Danlos

Is there any natural treatment for Ehlers Danlos?

15 answers
ICD9 and ICD10 codes of Ehlers Danlos

ICD10 code of Ehlers Danlos and ICD9 code

15 answers
Living with Ehlers Danlos

Living with Ehlers Danlos. How to live with Ehlers Danlos?

21 answers
Ehlers Danlos diet

Ehlers Danlos diet. Is there a diet which improves the quality of life of p...

26 answers

World map of Ehlers Danlos

Find people with Ehlers Danlos through the map. Connect with them and share experiences. Join the Ehlers Danlos community.

Stories of Ehlers Danlos

EHLERS DANLOS STORIES
Ehlers Danlos stories
Eu nasci com Síndrome de Ehlers-Danlos, afinal a Síndrome de Ehlers-Danlos é uma doença genética. Eu descobri que tinha Síndrome de Ehlers-Danlos aos 45 anos, por acaso. Vendo uma apresentação sobre Score de Beighton (método de avaliaçã...
Ehlers Danlos stories
I suffered my entire life with issues and signs of Hypermobile type Ehlers-Danlos Syndrome, including extreme flexbility as a child that I "grew out of" in my young adulthood, slowlyl stiffening with age and early onset arthritis. Like too many, doct...
Ehlers Danlos stories
Lost all my friends all I know is chronic pain, 29 years has passed in a blink of an eye. I am lonely depressed and given up on by doctors who just label me and close the door. Stick me on meds and shut me up. I have degeneration in my spine 3 hernia...
Ehlers Danlos stories
I have always been sick all my life, not knowing why. When I started taking my BP more frequently, I realized alot of my symptoms were BP related, thus since been dx with dysautonomia, due to EDS. Before this time, I had pursued answers, with many cl...
Ehlers Danlos stories
I'm 54 years old and have had to learn to "just live with it". Stretchy skin and bendy joints have the pain in my life. My skin has been so thin that what would be a bruse for a normal person was a laceration for me. My knees are a wreck. My body hur...

Tell your story and help others

Tell my story

Ehlers Danlos forum

EHLERS DANLOS FORUM
Ehlers Danlos forum
We were in a car accident several months ago. Before that, I was hypermobile, but not as badly as I am now. Could the trauma of the accident trigger more issues with my connective tissue overall? For example, even though my feet/legs were uninjured, ...
Ehlers Danlos forum
So in the past 2-3 months i have been doing acupunture but after wards im in so much pain to wear my doctor puts the needles, does this happen to you?
Ehlers Danlos forum
The doctor has recommended exercise and physiotherapy to strengthen the muscles of my son and, then, protect his joints... anybody can advise in what kind of exercises or sport? I thin swimming may be the best option… Many thanks!
Ehlers Danlos forum
Looking for other diagnosed VEDS.

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map