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What is Ehlers Danlos

Ehlers Danlos description. Find out what Ehlers Danlos is and know more about it.

What is Ehlers Danlos

Ehlers-Danlos syndrome (EDS) is a group of genetic disorders that affect the connective tissues in the body. Connective tissues provide support and structure to various organs, joints, and blood vessels. EDS is characterized by a defect in the production, structure, or function of collagen, which is a major component of connective tissues.


There are several types of EDS, each with its own set of symptoms and complications. Common symptoms include joint hypermobility (excessive flexibility), skin that is stretchy and fragile, and easy bruising. Individuals with EDS may also experience chronic pain, joint dislocations, and problems with their blood vessels, heart, and digestive system.


EDS is typically inherited, meaning it is passed down from parents to their children. The severity of symptoms can vary widely among individuals, even within the same family. While there is no cure for EDS, treatment focuses on managing symptoms and preventing complications. This may involve physical therapy, pain management, bracing or splinting, and surgery in some cases.


It is important for individuals with EDS to work closely with healthcare professionals to develop a personalized treatment plan and receive appropriate support.


Diseasemaps
6 answers
EDS refers to a group of inherited connective tissue disorders. It can cause a huge array of symptoms and problems, often including generalized joint hypermobility and instability, pain and fatigue, heart and blood vessel problems, GI problems, neurological problems, and skin problems.

Posted Jan 14, 2018 by stairphobe 3070
Eds is a connective tissue disease that affects the way a person produces collagen and absorbs collagen

Posted Sep 29, 2019 by Amy 13500
The Ehlers-Danlos syndromes are a group of connective tissue disorders that can be inherited and are varied both in how they affect the body and in their genetic causes. They are generally characterized by joint hypermobility (joints that stretch further than normal), skin hyperextensibility (skin that can be stretched further than normal), and tissue fragility.

Posted Mar 11, 2020 by MegTheMariner 1870
EDS is a connective tissue disorder. This effects things like the collagen in your skin, and your ligaments in tendons in your body.

Posted May 12, 2020 by Alex 3551
A group of inherited disorders that mostly affect the skin joints and blood vessels

Posted Nov 19, 2021 by NuNu 2550

What is Ehlers Danlos

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World map of Ehlers Danlos

Find people with Ehlers Danlos through the map. Connect with them and share experiences. Join the Ehlers Danlos community.

Stories of Ehlers Danlos

EHLERS DANLOS STORIES
Ehlers Danlos stories
Eu nasci com Síndrome de Ehlers-Danlos, afinal a Síndrome de Ehlers-Danlos é uma doença genética. Eu descobri que tinha Síndrome de Ehlers-Danlos aos 45 anos, por acaso. Vendo uma apresentação sobre Score de Beighton (método de avaliaçã...
Ehlers Danlos stories
I suffered my entire life with issues and signs of Hypermobile type Ehlers-Danlos Syndrome, including extreme flexbility as a child that I "grew out of" in my young adulthood, slowlyl stiffening with age and early onset arthritis. Like too many, doct...
Ehlers Danlos stories
Lost all my friends all I know is chronic pain, 29 years has passed in a blink of an eye. I am lonely depressed and given up on by doctors who just label me and close the door. Stick me on meds and shut me up. I have degeneration in my spine 3 hernia...
Ehlers Danlos stories
I have always been sick all my life, not knowing why. When I started taking my BP more frequently, I realized alot of my symptoms were BP related, thus since been dx with dysautonomia, due to EDS. Before this time, I had pursued answers, with many cl...
Ehlers Danlos stories
I'm 54 years old and have had to learn to "just live with it". Stretchy skin and bendy joints have the pain in my life. My skin has been so thin that what would be a bruse for a normal person was a laceration for me. My knees are a wreck. My body hur...

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Ehlers Danlos forum

EHLERS DANLOS FORUM
Ehlers Danlos forum
We were in a car accident several months ago. Before that, I was hypermobile, but not as badly as I am now. Could the trauma of the accident trigger more issues with my connective tissue overall? For example, even though my feet/legs were uninjured, ...
Ehlers Danlos forum
So in the past 2-3 months i have been doing acupunture but after wards im in so much pain to wear my doctor puts the needles, does this happen to you?
Ehlers Danlos forum
The doctor has recommended exercise and physiotherapy to strengthen the muscles of my son and, then, protect his joints... anybody can advise in what kind of exercises or sport? I thin swimming may be the best option… Many thanks!
Ehlers Danlos forum
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