Initially diagnosed at age 16. Diagnosis was precipitated by onset of double vision shortly after a snowboarding trip. Full resection with wide margins done by the fantastic team at Vancouver General Hospital, followed by proton beam radiation in Lom...
My wife suffered sacral chordoma at 33 yrs and was operated at Massachusetts General Hospital. Since then she is battling the pains of the construct placed at the bottom of her spine.
2 people with Chordoma have taken the SF36 survey. Mean of Chordoma is 2790 points (78 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
