I was born with Cruzon Syndrome,there is 4 generations in my family,me being 2nd.
I had a lot of teasing at School,didn't have any confidence and didn't know anyone else with it.
Two of my children have it,and three of my Grandchildren,and two have...
My son Anaston Roy he is 9 years old very claver we done two 8 hours operation. very sad to me and my wife because some time fits come to him we dont know when it come. Lefort Ill Mid face surgery till not do to him. he is very clavee and intelligent...
I was born normal, but eventually was diagnosed, it was hard for my parents but I was very young and was normal for me, time after I had hydrocephalus and johannesburg I operated with the valve Hackim after he tapo I play again operate, after that I ...
1 people with Crouzon syndrome have taken the SF36 survey. Mean of Crouzon syndrome is 3055 points (85 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
