My symptoms first started in October of 2010. I began to investigate my symptoms on the internet. After searching I came upon Erythromelalgia and ALL my symptoms matched. I then began my search for a doctor who could and would help ...
I started getting stange burning in my feet and calves about a year ago. Went to many doctors and had all the test. None could diagnose me. Said probably samll fiber neuropathy even thought the skin biopsy was negagive. Stumbl...
I can't remember a time when I didn't have hot feet. I haven't been diagnosed, but my sister has. I also have neuropathy. My feet look black most of the time and I just had an ultrasound and doplar done only to find my circulation is excellent. ...
I was diagnosed in 2015 bij the Academisch Ziekenhuis Maastricht (academical hospital in Maastricht, netherlands). After a 1,5 year journey of searching for answers. I love to be in Facebook support groups, they really get what I am going through.
20 people with Erythromelalgia have taken the SF36 survey. Mean of Erythromelalgia is 1446 points (40 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
