http://gm-123.org/ Eli was born in March 2009, and progressed pretty normally until about age 18 months. He will be 7 years old in March 2016. At age 2 his development began to slow and gradually regressed. He is currently 6 years old and can no...
The Cure GM1 Foundation is dedicated to hope and to directly funding research for a cure for GM1 Gangliosidosis, a lysosomal storage disease that attacks the brain and spinal cord and is always fatal in children. GM1 is a progressive and degene...
My son is 26 years old, his name is Eric.
He was diagnosed at age 12. He can no longer speak or walk and wears diapers.
We have been fighting GM1 TYPE II for 26 years and it is devastating.
0 people with GM1 Gangliosidosis have taken the SF36 survey. Mean of GM1 Gangliosidosis is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
