There are many different ways to live your life. There are many different walls put in front of you throughout your life. Some people lose a family member, others a love but few have to battle against themselves and the misfortune of an illness. Ha...
I have "spontaneous" MHE. No one else in my family has been identified as having MHE. We first discovered it when I was 4 years old, and I have had 17 surgeries. I have actually done really well most of the time and I have a very active life! M...
I got HME from my momther and was diagnosed at the early age of three. I'm shot in height and have short arms and legs. I was treated at A.I. DuPont for my entire childhood. The doctors wanted to operate nemourous times, but being scared I refused. W...
10 people with Hereditary multiple exostoses have taken the SF36 survey. Mean of Hereditary multiple exostoses is 2207 points (61 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
