I am 52 years old and was diagnosed with Hereditary Spastic Paraplegia (HSP) when I was 36. HSP is a progressive neurological condition caused by the inheritance of a faulty gene from an affected parent. My onset of this condition occurred ...
I started showing minor symptoms (heavy footedness) in 2007/8. There wasnt any previous knowledge of health issues anywhere on either side of my family that we knew of. Talking with my older brother on the phone, he lives in Sydney, we realised we bo...
I am 53 and have been symptomatic all my life, (HSP3a). I have a cousin with HSP, but we don't keep in touch, my dad and an aunt also had HSP, but have since passed away. Other than these 3 family members i have never met anyone else with this diseas...
With a family history of her mum being crippled and her grandmother in a wheelchair, neither living to an elderly age, Mum did not know there was a hereditary disease causing disability in her family.
It's difficult to pinpoint the onset of mu...
30 people with Hereditary Spastic Paraplegia have taken the SF36 survey. Mean of Hereditary Spastic Paraplegia is 1512 points (42 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
