We have 5 adult children. 2 of our daughters have Joubert Syndrome. Suzie was born in 1981 and Nancy was born in 1986. They are #2 and #3 in our family. No one else on either side of our families have anything like Joubert Syndrome. ...
1 people with Joubert Syndrome have taken the SF36 survey. Mean of Joubert Syndrome is 515 points (14 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey