Hi I am Jenna's Mom, Kristina and I run this page. I am so excited to be able to get Moyamoya Disease listed on Disease Maps. Please read Jenna's Story and contact me with any questions or to talk. Our Facebook page is listed at the bottom.&n...
I have 3 children born with mm my oldest was misdiagnosed for so long that it wasn't until my 2nd child was born and began having strokes at age 2 months, multiple tests multiple procedures and acquisitions of shaking baby syndrome ...
My son is 2 years old and between August 2015 and October 2015 he has had 3 strokes, he was dignosed with moyamoya, he has had surgey in the right side of the brain and we are waiting to get second surgey in early 2016, as I no how hard a...
I have had heavy headaches for as long as I can remember. I was diagnosed to have migrane when I was 12 years old. In year 2011 I started to work in a big company as a payroll accountant, it was at the end of the year. It was a really hectit time sin...
My sons name is jayden and he's two years old he was diagnosed with mws almost 8 months ago if he could talk this is what he would tell u about this syndrome and himself. I am have mws but mws does not have me doctors said i never crawl but I'm scout...
5 people with Moyamoya have taken the SF36 survey. Mean of Moyamoya is 1467 points (41 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
