Since some symptoms parallel Parkinson’s, it is known as a Parkinson’s Plus disease. As the disease attacks the brain, there is a loss of physical function as well as autonomic functions and memory issues. Unlike Parkinson’s Disease, it tends to be focused on one side. Major symptoms early on include Orthostatic Hypotension causing falls. This is compounded by progressive weakness. Eventually, issues of urinary retention, bowel issues, swallowing, and speaking become the most troublesome.
There are 856 people in the Multiple Systems Atrophy map
I was a carer to my sister Maureen who passed away from MSA in April 2014. I am more than happy to talk to anyone re: this disease (Multiple System Atrophy) & point them in the right direction for further information, or to just lend an ear if so...
It didn't seem like much of a disease when it started. I was in my 50s when dizziness arrived, not occasional dizzy spells but an almost constant sense of being on the deck of a boat. I began to stumble once in a while, and later on I had trouble sta...
My story is really my family's story.
In 2010, after a year or so of steadily more frequent falls and dropping things and such. Many different Doctor appointments and being told, "You drink too much", "You abused your body too much when you were you...
My mom , Khadija , was diagnosed with Parkinson's disease in 2011 due to difficulty in fine movements like inserting a key into the keyhole in the car. Mom was not responsive to medications prescribed by her neurologists nor did she have a unilateral...
There was nothing unusual during my childhood, other than being the oldest child with two alcoholic parents and the responsibility that entails.
As a young adult I put myself is a high stress lifestyle. A young divorcee single mom working multiple j...
Does anyone with MSA experience the sensation like you are "bobbing up and down" on a boat? I experience this most of the time. It tends to lessen by standing up or laying down! If so, do you know what it is?
Thanks for adding your marker to the World MSA map. If you know others from the various MSA forums please encourage them to do the same. Did you know... A 57 page booklet of MSA information is available to download from the MSA Coalition website.&nbs...
When: October 14 - 15, 2016 Where: New Orleans, Louisiana, USA Register now and get your FREE ticket at Http://www.MultipleSystemAtrophy.org
Tentative Conference Schedule
Many thanks to this year’s medical host, David Houghton, M...
Chicago and area MSA support group meeting April 17th 2-4PM Goodwill Crystal Lake - 1016 Central Park Drive, Crystal Lake, IL. Contact John Standley [email protected] 815-403-2221
25 people with Multiple Systems Atrophy have taken the SF36 survey. Mean of Multiple Systems Atrophy is 1113 points (31 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
Symptoms
Treatments
Multiple System Atrophy Coalition
MSA-AMS Belgium
www.msa-benelux.org
Pam Bower
