Finding out after 50 years why my right chest is different from my left has come with some tears. I'm pleased to know I'm not a freak and not alone in the world but not knowing sooner that I have Poland syndrome has left me with mental scares that ar...
PIP-UK was founded in 2011 by mother and daughter Liz and Sam. They were inspired by the birth of Sam’s first child, who was born with Poland Syndrome in 2008.
Sam, has this to say about why PIP-UK was created
Our family’s journey ...
When he was born I knew right away something was wrong. Aftwr a second opinion at only 17 days old he was diagnosed with Poland Syndrome. Along with numerous other problems he's a healthy boy. He is 5 now very anti-social, behavior problems and we ar...
quando eu era criança eu sentia uma pessoa normal ate que fui virando adolescente eu vi que um lado do peito não desenvolvia e que eu era a unica pessoa que era assim e não conhecia ninguem assim ai achei melhor esconder me...
13 people with Poland Syndrome have taken the SF36 survey. Mean of Poland Syndrome is 2417 points (67 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
