My name is Anya. I am a mother of two children. My daughter was born with a smal jaw and an open palates. She has Stickler. We live in Netherlands and will be glad to meet other families with Stickler exprience. Best regards, Anya.
New to this site and find it great that I can connect with other sufferers. I'm Kim, I'm 23 almost 24 years old. I suffered my first retinal detachment in April 2014 and have since had 7 operations on my eyes - 5 to the left eye which had the detachm...
I was born in 1965. I was approximately three years out when it was determined I had neurosensory hearing loss in both ears. I had speech therapy in elementary school, as I could not correctly pronunciate any words with an "R". I ha...
4 people with Stickler syndrome have taken the SF36 survey. Mean of Stickler syndrome is 1375 points (38 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
