If you suspect that you may have EGE, it is important that you make an appointment with a GI Specialist to be tested. EGE can only be diagnosed via endoscopy. Also, verify the specialist understands TIGER protocol and that a PPI is started at least six weeks prior to endoscopy. Unfortunately, due to its rarity, there are many specialist out there that do not understand how to properly diagnose EGE. I recommend visiting the APFED website to learn more about EGE and what questions should be asked when visiting a specialist. Once diagnosed, the best thing you can do is to educate yourself. It is important to learn to become a strong advocate to ensure you receive the best care possible to manage your disease.