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Erythromelalgia
Advice
Advice of Erythromelalgia
elevation
by Nichole M.
Lyrica
by Ginette Schwenn
Pain therapist
by Natascha
Amitriptyllin
by Arja Keitaanranta
Gabapentin and Nortriptyline have enabled me to live with this condition.
by Colleen Horton
Sleep with my feet higher than the body, above the blanket.
by Nina saglien
working up to gabapentin 600 mg twice a day
by Shirley Close
Meditation and Yoga w/deep breathing
by Audrey
Being believed and finally helped
by Mrs Britt Long
Keeping house at moderate temperature ALL year
by Martha Osborne
Meeting other people same or similar to you in hospital so not alone
by Britt long
Cold showers before going to bed
by Virginia basham
gentle cooling with a fan
by lorna mitchell
Large doses of Gabapentin gave me some quality of life back.
by Tollie Godwin
Feet in ice
by Jacques st Jean
gralise
by heather
topiramate100 mg x2
by monica
doTERRA essential oils have helped the best - peppermint, basil, and Deep Blue
by Mary Crumly
Take Effexor SR 150mg a day for many years.
by Mitzi Boulais
Eliminating grains, sugar, legumes from my diet
by Paula Childers
propanalol was the first medication to help me
by Cindy Reilly
Finding a doctor that gave me a diagnosis
by MMG
Supportive family
by Susan Czetwerzuk
1% Ketamine/2% Amitriptyline cream brings some relief
by Richard Van Ausdal
Icepaks constantly for feet and hands
by Lisa
Staying as active as I can. every day
by Patty
cooling lotion
by Amy
Combination of Amitriptiline and Etoricoxib works for me.
by Ellen van der Veen
Lyrica. Venlafaxine and Methadon
by Marijke van de Riet
Stay in AC
by Dee Now
Vornado fans, mister fans, central air
by Samara Rose
Patience with myself!
by Viv
CPAP machine
by Carolyn-Michael
Swimming
by Vicky
My Husband stopped drinking as it hurts too much afterwards - and not the hangover
by Julia B
Compound Cream
by Prentha
When I take VIT.D
by Jan Peter TANGHE
Homeopathy natural remedies
by LYNN
Asprin has relieved some of the pain which had previously been constant.
by Sandy k
Coconut Oil to moisture skin
by Kim
Conversing back and forth on Erythromelalgia fb groups
by
Being diagnosed - taken 18mths
by Louise
Gabapentin
by andrea
Amitriptyline has helped me sleep through bad flares
by Josee
Change of diet. Now on my blood type diet (A). I have noticed a big change to my symptoms.
by Louise
Edronax
by Weasel
Just finding a Doctor who was able to tell me what I had was huge for me.
by MaryHenry10
Putting my feet into 30˚C cold water
by Ismeralda Leila
Having a great physical therapist
by Donna
Soaking my feet in ice water
by Kathleen
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