Being positive
medication
Cold water, cooler temperatures
Limiting hot food/drink, cooking, cleaning, and exercise to AM hours rather than PM hours when my flares are worse or more likely to occur
Air conditioning
Air conditioning
Central AC
Having the support of God, my family, and friends. Being SEEN by them. I've tried to be very open about the EM even at risk of being misunderstood (which I am), but I try to invite others into my world instead of closing off.
avoiding sun on my feet
Try to figure out triggers and avoid them
Mild exercise
Clonidine tablets (short-term) + nortriptyline
Elevation
My friend blowing on my back while lightly whisking her fingers around.
My wonderful husband who also has chronic pain, so he always "gets it".
Lyrica
Celebrex, 100-200 mg, twice daily, helped pain and suppressed flares for one month; Lyrica 75mg twice daily has helped with pain, even though flare ups still occur often.
Using my feet less.
Avoiding triggers that cause flares
Diagnosed in December of 2016
Neurologist familiar w Erythrolelagia & willing to work thru varied symptoms & cocktails of meds
Wearing compression Under Armour pants and loose Under Armour shirts.
Staying cool
Stand strong when dealing with health professionals; if you think you may have erythromelalgia then try and find an open-minded health professional.
I've had an EMG, nerve conduction study. Shows a couple damaged nerves, but nothing too extensive. Done with the neurologist.
Not eating dinner at night helps me feel better in the morning
12 years of Being on Tramadol and Lyrica
Cooling mechanisms air conditioning
live with fans and ice 24/7
Fibro Cream
Gabapentin
Cold to ICE water. Very hard to do but works really well
taking magnesium citrate 400 mg at bedtime
trying to keep busy
Gabapentin 300mg twice daily
Lyrica
Compression stockings
My partner understands I cannot go the same speed as him
My son uses fans to cool down
Family
Family
Elevate feet/hands
Less stress
Finding good doctors is key to getting better
eu descobrir a doença hoje
Chacos sandals
Diet
Write a journal
cooling towel
air conditioning