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Erythromelalgia
Advice
Advice of Erythromelalgia
Trigger point injections ( Chinese medicine )
by Natascha
Cold pack near the feet when I go to bed
by Arja Keitaanranta
The on line support groups and my husband have been my lifeline.
by Colleen Horton
Walk as little as i can. Allways put my feet up in the air, as often as i can.
by Nina saglien
9 X 20 inch gel ice pack to put around my feet and legs
by Shirley Close
Taking ALA (Alpha Lipoic Acid)
by Audrey
Meeting others like me we all can empathise as we are all linked with raynauds em scleroderma etc
by Mrs Britt Long
Lyrica
by Martha Osborne
Being believed
by Britt long
Lying still in bed
by Virginia basham
elevating affecting limbs
by lorna mitchell
Less stress seems to improve my over all flares.
by Tollie Godwin
Portable climatisation
by Jacques st Jean
family support
by heather
BupropionXL300mg
by monica
Keeping my house and myself cool
by Mary Crumly
Exercise - walking at a slow pace daily
by Paula Childers
venlafexine has also been helpful
by Cindy Reilly
Taking Cymbalta.
by MMG
Magic bags from the freezer
by Susan Czetwerzuk
cool bath
by Richard Van Ausdal
Cold Towels , air conditioning and fans which keep the air moving around me
by Patty
cool water soaks
by Amy
Also lots of love from my friends and family is what gets me through the day.
by Ellen van der Veen
Acceptance and a fantastic husband .
by Marijke van de Riet
Stay off of feet
by Dee Now
THC/CBD
by Samara Rose
Open shoes
by Viv
Salsalate
by Vicky
Climate controlled the house with a reverse cycle air conditioner/heater - big power bills worth it
by Julia B
Ice packs used for autonomic dysnomia to cool core body temp down
by Prentha
When It is cooler....like now
by Jan Peter TANGHE
Meditation
by LYNN
Soaking in cold water when flaring
by Sandy k
Lanacaine spray when I can't stand it anymore
by Kim
Maintaining as cool and humidity free environment as posible
by
Finding support online with other sufferers
by Louise
Ice
by andrea
My very patient and loving hubby
by Josee
Exercise. I walk of a night time when it is cooler.
by Louise
Water in a bucket
by Weasel
Reading on line that Lidocaine patches can help with the pain
by MaryHenry10
Swimming
by Ismeralda Leila
Eating healthy
by Donna
taking Xanax to get good sleep
by Kathleen
Avoiding certain foods and drink
by Rebecca
giving up work
by wen
My kids inspire me to keep going
by Racquel
Peppermint lotion on flaring areas provides cooling without the damage of ice
by Sara
Ice packs
by Christa
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