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Erythromelalgia
Advice
Advice of Erythromelalgia
Ice packs
by Christa
Cool Bath
by Eleanor
Getting 'equipment' that helps like a cane that becomes a seat, or my TravelScoot mobility device, or a massage therapy stool to use when cooking (it's on rollers & can adjust to needed heights), or a small FAN to take everywhere with me.
by jennifergehman
cooling gels on my feet at night
by Anne
Meds
by Michelle
Playing with my dog
by Afton
Pyridostigmine (Mestinon)
by Andrea
Moved to milder climate
by Donna
Benadryl, because it deals with the anxiety that comes with the flares.
by Bernadette
My cats
by Stephanie Briggs
Compression Stockings
by ChristanM
Ice and elevation (if only we can walk around with our legs above our hearts and our hands above our heads!
by Kimberlee
Get orthopedic (open) shoes.
by Suzanne
Cooling myself before flares start
by Kathy
Struggling to find a doctor to help treat the disorder
by Dianne Valentino
Be proactive in taking meds- don't wait for symptoms to escalate. I set alarm during the day. LOTS of water!
by Renea
Wearing sandals everywhere! Don't wear the same pair of shoes too many days, change off.
by Bauer
Erythromelalgia is NOT in your mind.
by SM
I've had starting blood work. Showed all WNL. B12 is a little low, might ask for a B12 shot.
by Laura
Cutting out sugar, processed foods, fried foods really help
by Jo
Having friends be very supportive
by Jeff
Chilled lotions
by Linzscheer
Lidocaine
by Heather
Lidocaine Patches
by Shauna
Learning to use freezer bags for my feet ended the harm to my feet.
by
wear compression foot sleeve at night. have cooling pad (made for dogs) under bottom sheet
by cmmartin
more sleep
by surie
Ceiling fan
by Brandi
Carbamazepine
by Janice
Exercise
by calcipher
Having cold socks are my best friend!
by Quinn
My son uses cooling packs
by Debs
Being erythromelalgia warrior member
by Britt
Being erythromelalgia warrior member
by Britt
Turning on fan
by Abroadrick3
No socks
by Lissee63
Do lots of research on ur disease
by Tess
minha mae achava que era algum bcho que tinha me picado
by amor
Taking breaks
by Emily
Exercise
by Sean
My psychiatrist helping me with my depression through this.
by Winter5@
rest
by Nichole M.
elevation
by Ginette Schwenn
Dietary restrictions
by Natascha
Cold gel
by Arja Keitaanranta
Changing routines and realizing I cannot do everything I used to but can still enjoy many other things.
by Colleen Horton
Use footcream every day, so that you keep the skin soft.
by Nina saglien
keeping cool with air conditioner and ceiling fan
by Shirley Close
Finding Dr. Jay S. Cohen (w/EM) and the website MedicationSense.com
by Audrey
Medication and mostly frequent illoprost infusions at the fantastic hospital Royal free in London
by Mrs Britt Long
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