Ice packs
Cool Bath
Getting 'equipment' that helps like a cane that becomes a seat, or my TravelScoot mobility device, or a massage therapy stool to use when cooking (it's on rollers & can adjust to needed heights), or a small FAN to take everywhere with me.
cooling gels on my feet at night
Playing with my dog
Pyridostigmine (Mestinon)
Moved to milder climate
Benadryl, because it deals with the anxiety that comes with the flares.
Compression Stockings
Ice and elevation (if only we can walk around with our legs above our hearts and our hands above our heads!
Get orthopedic (open) shoes.
Cooling myself before flares start
Struggling to find a doctor to help treat the disorder
Be proactive in taking meds- don't wait for symptoms to escalate. I set alarm during the day. LOTS of water!
Wearing sandals everywhere! Don't wear the same pair of shoes too many days, change off.
Erythromelalgia is NOT in your mind.
I've had starting blood work. Showed all WNL. B12 is a little low, might ask for a B12 shot.
Cutting out sugar, processed foods, fried foods really help
Having friends be very supportive
Chilled lotions
Lidocaine
Lidocaine Patches
Learning to use freezer bags for my feet ended the harm to my feet.
wear compression foot sleeve at night. have cooling pad (made for dogs) under bottom sheet
more sleep
Ceiling fan
Carbamazepine
Exercise
Having cold socks are my best friend!
My son uses cooling packs
Being erythromelalgia warrior member
Being erythromelalgia warrior member
Turning on fan
No socks
Do lots of research on ur disease
minha mae achava que era algum bcho que tinha me picado
Taking breaks
Exercise
My psychiatrist helping me with my depression through this.
elevation
Dietary restrictions
Changing routines and realizing I cannot do everything I used to but can still enjoy many other things.
Use footcream every day, so that you keep the skin soft.
keeping cool with air conditioner and ceiling fan
Finding Dr. Jay S. Cohen (w/EM) and the website MedicationSense.com
Medication and mostly frequent illoprost infusions at the fantastic hospital Royal free in London