A Erythromelalgia interview .

Roger's interview


How did all start?

Itchiness in webbing of my hands

Do you already have a diagnosis? How long did it take you to get it?

Yes .. three weeks

For what medical specialties have you been treated? What has been the most useful specialty for your?

Heart attack 2002 .. two stents inserted. Stenosis of the vertebra fusion 2009 & 2012 ..

What has been the most useful thing for you so far?

Ciclosporin

What have been your biggest difficulties?

Coping in hot weather

How has your social and family environment reacted? Have your social or family relationships changed?

With compassion & not really although can’t participate in certain social events.

What things have you stopped doing?

Exercising

What do you think about the future?

It’s going to be difficult iro life style changes

So far, which years have been the best years in your life? What have you done during them?

Twenties

What would you like to do if you didn’t have your condition?

Travel

If you had to describe your life in a sentence, what would it be?

Can’t think of one

Finally, what advice would you give to a person in a similar situation?

Do wherever it takes to try lesson the adverse effects

Interview Erythromelalgia

Dec 12, 2017

By: Roger

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