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Celebrities with Erythromelalgia

What famous people have Erythromelalgia? Find out which celebrities, athletes or public figures have Erythromelalgia.

Celebrities with Erythromelalgia

Erythromelalgia is a rare neurological condition characterized by intense burning pain, redness, and heat in the extremities, typically the hands and feet. While it affects people from all walks of life, including celebrities, it is important to note that the condition does not discriminate based on fame or fortune. Here are a few well-known individuals who have publicly shared their experiences with erythromelalgia:



Catherine Zeta-Jones


Catherine Zeta-Jones, the acclaimed Welsh actress, has been open about her battle with erythromelalgia. She has spoken about the challenges she faces due to the condition, including the constant pain and discomfort it causes. Despite her struggles, Zeta-Jones continues to shine in her career and uses her platform to raise awareness about this lesser-known condition.



David Begnaud


David Begnaud, a prominent journalist and news correspondent for CBS, has also shared his experience with erythromelalgia. He has used his platform to shed light on the condition and educate the public about its impact on daily life. Begnaud's openness about his struggles has helped to raise awareness and provide support to others facing similar challenges.



Joan Dooley


Joan Dooley, a former nurse and patient advocate, has become a well-known figure in the erythromelalgia community. She has dedicated her life to raising awareness, supporting patients, and advocating for better understanding and treatment of the condition. Dooley's tireless efforts have made a significant impact in the lives of many individuals affected by erythromelalgia.



Other Celebrities


While not as widely known, there may be other celebrities who prefer to keep their erythromelalgia diagnosis private. It is important to respect their privacy and focus on the collective effort to raise awareness and support those affected by the condition.



Conclusion


Erythromelalgia is a challenging condition that affects individuals from all walks of life, including celebrities. The experiences of Catherine Zeta-Jones, David Begnaud, and Joan Dooley highlight the importance of raising awareness and supporting those affected by this rare neurological disorder. By sharing their stories, these individuals have helped to shed light on erythromelalgia and inspire others to seek proper diagnosis, treatment, and support.


Diseasemaps
5 answers
Singer Grace Slick who used to sing with the San Francisco group The Jefferson Airplane

Posted Dec 27, 2017 by mleaver 2500
There are no celebrities with Erythromelalgia (yet!)

Posted Apr 4, 2018 by Alys 2500
Grace Slick of Jefferson Airplane

Posted Jan 18, 2021 by Kathy Vanicek 2500
I don’t know if any celebrities with EM

Posted Aug 14, 2021 by saguaros 3000

Celebrities with Erythromelalgia

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Stories of Erythromelalgia

ERYTHROMELALGIA STORIES
Erythromelalgia stories
My symptoms first started in October of 2010.  I began to investigate my symptoms on the internet.  After searching I came upon Erythromelalgia and ALL my symptoms matched.  I then began my search for a doctor who could and would help me.  I fina...
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I started getting stange burning in my feet and calves about a year ago.  Went to many doctors and had all the test.  None could diagnose me.  Said probably samll fiber neuropathy even thought the skin biopsy was negagive.  Stumbled across the Li...
Erythromelalgia stories
A lot of medication since 5 years Nothing help  
Erythromelalgia stories
I can't remember a time when I didn't have hot feet. I haven't been diagnosed, but my sister has. I also have neuropathy. My feet look black most of the time and I just had an ultrasound and doplar done only to find my circulation is excellent. 
Erythromelalgia stories
I was diagnosed in 2015 bij the Academisch Ziekenhuis Maastricht (academical hospital in Maastricht, netherlands). After a 1,5 year journey of searching for answers. I love to be in Facebook support groups, they really get what I am going through.

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