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How do I know if I have Erythromelalgia?

What signs or symptoms may make you suspect you may have Erythromelalgia. People who have experience in Erythromelalgia offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Erythromelalgia?

Erythromelalgia is a rare condition characterized by episodes of intense burning pain, redness, and heat in the extremities, typically the hands and feet. It is also known as Mitchell's disease or erythermalgia. If you are experiencing symptoms that resemble erythromelalgia, it is important to consult with a healthcare professional for an accurate diagnosis. While I am not a doctor, I can provide you with some general information on how to recognize potential signs of erythromelalgia.



Symptoms:


The hallmark symptom of erythromelalgia is a sensation of intense heat and burning pain in the affected areas. This pain can be triggered or worsened by various factors, including heat, exercise, standing for long periods, or even emotional stress. The affected areas may also become red, swollen, and feel extremely warm to the touch. The symptoms are typically symmetrical, meaning they occur on both sides of the body.



Diagnosis:


Diagnosing erythromelalgia can be challenging as it is a rare condition and shares similarities with other disorders. A healthcare professional will likely begin by taking a detailed medical history and conducting a physical examination. They may also order additional tests to rule out other possible causes and confirm the diagnosis. These tests may include blood tests, nerve conduction studies, thermography, or even genetic testing in some cases.



Treatment:


While there is no cure for erythromelalgia, treatment aims to manage and alleviate the symptoms. Your healthcare provider may recommend a combination of approaches, including:



  • Lifestyle modifications: Avoiding triggers such as heat, warm environments, and activities that worsen symptoms.

  • Medications: Prescribing medications like aspirin, anticonvulsants, or local anesthetics to help reduce pain and improve blood flow.

  • Cooling techniques: Applying cool compresses, using cooling lotions, or soaking in cool water to relieve symptoms.

  • Supportive therapies: Physical therapy, occupational therapy, or biofeedback techniques may be recommended to help manage symptoms and improve quality of life.



Conclusion:


If you suspect you may have erythromelalgia based on the symptoms you are experiencing, it is crucial to consult with a healthcare professional for an accurate diagnosis. They will be able to evaluate your symptoms, perform necessary tests, and provide appropriate treatment options tailored to your specific needs. Remember, self-diagnosis is not recommended, and only a qualified medical professional can provide a definitive diagnosis.


Diseasemaps
6 answers
If you have any of the symptoms I explained earlier such as flare-ups, burning pain, redness in the face, hands, feet mostly then that is a good indicator. I would avoid going to a primary doctor because 90% of the time they will have not even heard of this disease. I would go and see a rheumatologist.

Posted Sep 16, 2017 by Jeff 3050
You can self diagnose by symptoms or go to several docs like rhumatologists, hematologists, and neurologists who will do lots of tests to rule out other diseases.

Posted Dec 27, 2017 by mleaver 2500
Becoming much more tired, waking up at night in pain. Swollen and bright red joints. Feels like you are being burned

Posted Apr 4, 2018 by Alys 2500
They call it “burning man” disease. Pain, redness, hot. I would research for a doc in the area with experience treating EM. Too many don’t know what it is, or don’t believe you. Take pictures in natural light against a solid color background is usually best.

Posted Jan 18, 2021 by Kathy Vanicek 2500
If your feet/hands turn red and feel like glass or are burning than it’s time to go to a rheumatologist. Before you go, see if it’s triggered by heat. If not than it’s probably not EM. If it is than I’d be concerned that it is.

Posted Aug 14, 2021 by saguaros 3000

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