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Erythromelalgia prognosis

What is the prognosis if you have Erythromelalgia? Quality of life, limitations and expectatios of someone with Erythromelalgia.

Erythromelalgia prognosis

Erythromelalgia is a rare neurovascular disorder characterized by episodes of intense burning pain, redness, and heat in the extremities, typically the hands and feet. The condition is often triggered by heat, exercise, or even emotional stress. Erythromelalgia can significantly impact a person's quality of life, causing discomfort, mobility issues, and sleep disturbances.



The prognosis for erythromelalgia varies from person to person. Some individuals may experience mild symptoms that are manageable with lifestyle modifications and medications, while others may have more severe and debilitating symptoms. It is important to note that erythromelalgia is a chronic condition with no known cure, and its progression can be unpredictable.



Managing erythromelalgia involves a multidisciplinary approach, including the collaboration of healthcare professionals such as neurologists, dermatologists, and pain specialists. Treatment options aim to alleviate symptoms and improve the patient's quality of life. Medications such as vasodilators, anti-inflammatory drugs, and nerve pain medications may be prescribed to help control symptoms. Lifestyle modifications, such as avoiding triggers like heat and wearing loose-fitting shoes, can also be beneficial.



While there is no definitive cure for erythromelalgia, research and advancements in understanding the condition are ongoing. Some individuals may find relief through experimental treatments or participation in clinical trials. It is important for patients to work closely with their healthcare providers to explore all available options and develop a personalized treatment plan.



Overall, the prognosis for erythromelalgia depends on the individual's response to treatment and their ability to manage symptoms effectively. With proper medical care, lifestyle adjustments, and support, many individuals with erythromelalgia can lead fulfilling lives and minimize the impact of the condition on their daily activities.


Diseasemaps
5 answers
There is no standard prognosis.

Posted Dec 27, 2017 by mleaver 2500
In some cases Erythromelalgia can disappear although this is not common. It is known to get worse as a person ages. It is a chronic pain condition

Posted Apr 4, 2018 by Alys 2500
The prognosis is as varied as the causes are. It is generally chronic, but can go into remission at times. The pain can also be managed by some with meds or treatments. I am still seeking treatment. I will continue to exhaust all available treatments as advances are made.

Posted Jan 18, 2021 by Kathy Vanicek 2500
EM is chronic. In some people it magically disappears. For me it’s been rapidly getting worse. I can’t tell you what your prognosis will be because it’s different for everyone.

Posted Aug 14, 2021 by saguaros 3000

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My symptoms first started in October of 2010.  I began to investigate my symptoms on the internet.  After searching I came upon Erythromelalgia and ALL my symptoms matched.  I then began my search for a doctor who could and would help me.  I fina...
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I started getting stange burning in my feet and calves about a year ago.  Went to many doctors and had all the test.  None could diagnose me.  Said probably samll fiber neuropathy even thought the skin biopsy was negagive.  Stumbled across the Li...
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A lot of medication since 5 years Nothing help  
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I can't remember a time when I didn't have hot feet. I haven't been diagnosed, but my sister has. I also have neuropathy. My feet look black most of the time and I just had an ultrasound and doplar done only to find my circulation is excellent. 
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I was diagnosed in 2015 bij the Academisch Ziekenhuis Maastricht (academical hospital in Maastricht, netherlands). After a 1,5 year journey of searching for answers. I love to be in Facebook support groups, they really get what I am going through.

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Are there any eythromelgia 'experts' in the uk?

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