Story about Essential Thrombocythemia .

My Diagnosis

Feb 6, 2019

By: James

Year Condition Began: 2019


Its 06 feb 2019 and i was diagnosed yesterday!
It all started in october when i was feeling a bit tired and had a yellowish hue in my eyes so i decided to go to my GP for a checkup and a blood test to make sure everything was ok!
i am 36 weigh 111 kg but im a weight lifter...i go the gym 6 days a week im a non smoker i don't eat a lot of sugar and was drinking quite a bit but only beer and of course Guinness i haven't drank alcohol since october!!!
so i had my check up and a few days later my blood test and all was going ok until about 10 days later when the doc called me to ask how i was feeling??? i said i feel ok and he replied that my platelets were a bit high and he wanted to refer me to a hematologist!
so i went to see the hematologist at which time my platelets were at 860. he sent me for a CT scan with dye, a number of blood tests and a bone marrow aspiration (which i haven't done yet)

the day after my blood test i got a call from the hematologist telling me that i have to go on medication straight away so the faxed my pharmacy and i went and collected a course of Allopurinol and Hydroxyurea!
i googled both drugs to see what they were for and i instantly start freaking out!!!
i was convinced i had cancer!

my appointment to see the hematologist was moved up by a month and when i went to see him he told me i had ET and my platelet level was at 1200!!
i went for another blood test that day to see how i was responding to the drugs and my platelets had gone down to 920 in 5 days!
so it was a good sign that i was responding well to the drugs!!!

i'm not sure if im JAK2 positive or negative as i kind of went blank when he was talking to me!
I DON'T consider what i have to be cancer despite what some sites suggest and i am optimistic that we can all live normal lives without too much issues!
i'm kind of glad i caught it when i did instead of having a stroke or a clot!

id love to talk to anyone about the disease and what symptoms you feel!
i am always dizzy and feel a weird pressure in my head!
i don't feel to fatigued or tired but i have only diagnosed a day!
i have been getting pains in my legs and intense restless leg syndrome which i never had before!

I look forward to talking to anyone about their condition.

Regards
James Treacy
Dublin, Ireland!!!

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


A Essential Thrombocythemia interview

View interview


Essential Thrombocythemia prognosis

Essential Thrombocythemia prognosis

Is Essential Thrombocythemia contagious?

Is Essential Thrombocythemia contagious?

Latest progress of Essential Thrombocythemia

What are the latest advances in Essential Thrombocythemia?

Essential Thrombocythemia jobs

Can people with Essential Thrombocythemia work? What kind of work can ...

Prevalence of Essential Thrombocythemia

What is the prevalence of Essential Thrombocythemia?

Essential Thrombocythemia treatments

What are the best treatments for Essential Thrombocythemia?

Essential Thrombocythemia advice

Which advice would you give to someone who has just been diagnosed wit...

Is Essential Thrombocythemia hereditary?

Is Essential Thrombocythemia hereditary?