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Is it advisable to do exercise when affected by Evans Syndrome? Which activities would you suggest and how intense should they be?

See if it is advisable for people with Evans Syndrome to practice sports and which ones are the most recommended if you have Evans Syndrome

Evans Syndrome sports

Is it advisable to do exercise when affected by Evans Syndrome?


Evans Syndrome is a rare autoimmune disorder characterized by the simultaneous presence of autoimmune hemolytic anemia (AIHA) and immune thrombocytopenia (ITP). It occurs when the immune system mistakenly attacks red blood cells and platelets, leading to anemia and low platelet count. As with any medical condition, it is important to consult with a healthcare professional before starting or modifying an exercise routine.


Benefits of Exercise for Evans Syndrome Patients


Regular exercise can have numerous benefits for individuals affected by Evans Syndrome. While exercise may not directly treat the underlying condition, it can help improve overall health and well-being. Some potential benefits of exercise for Evans Syndrome patients include:



  • Improved cardiovascular health: Engaging in aerobic exercises such as walking, swimming, or cycling can help strengthen the heart and improve cardiovascular fitness.

  • Enhanced mood and mental well-being: Exercise releases endorphins, which are natural mood boosters. It can help reduce stress, anxiety, and depression commonly associated with chronic illnesses.

  • Increased energy levels: Regular physical activity can help combat fatigue and increase energy levels, improving daily functioning.

  • Weight management: Maintaining a healthy weight is important for overall health. Exercise can help manage weight by burning calories and building lean muscle mass.

  • Improved bone health: Weight-bearing exercises, such as walking or weightlifting, can help strengthen bones and reduce the risk of osteoporosis.

  • Enhanced immune function: While exercise does not directly impact autoimmune conditions, it can support overall immune system function and improve resilience.


Choosing the Right Exercises


When selecting exercises for individuals affected by Evans Syndrome, it is crucial to consider their overall health, physical abilities, and any limitations imposed by the condition. Here are some exercise recommendations:



  • Aerobic exercises: Low-impact activities like walking, swimming, or using an elliptical machine can be beneficial for cardiovascular health without putting excessive strain on joints.

  • Strength training: Incorporating resistance exercises using weights or resistance bands can help build muscle strength and improve overall body composition.

  • Flexibility exercises: Stretching exercises, yoga, or Pilates can help improve flexibility, joint mobility, and posture.

  • Balance exercises: Activities such as tai chi or yoga can help improve balance and reduce the risk of falls.


Exercise Intensity and Duration


The intensity and duration of exercise should be tailored to the individual's capabilities and overall health. It is important to start slowly and gradually increase the intensity and duration of exercise over time. Here are some general guidelines:



  • Begin with low to moderate intensity exercises and gradually increase the intensity as tolerated.

  • Aim for at least 150 minutes of moderate-intensity aerobic exercise or 75 minutes of vigorous-intensity aerobic exercise per week, spread across several days.

  • Include strength training exercises at least two days a week, targeting major muscle groups.

  • Listen to your body and rest when needed. It is important to avoid overexertion or pushing beyond your limits.


Precautions and Considerations


While exercise can be beneficial for individuals affected by Evans Syndrome, certain precautions should be taken:



  • Consult with a healthcare professional: Before starting or modifying an exercise routine, it is essential to consult with a healthcare professional who is familiar with your medical history and condition.

  • Monitor symptoms: Pay attention to any changes in symptoms during or after exercise. If you experience dizziness, shortness of breath, chest pain, or any other concerning symptoms, stop exercising and seek medical attention.

  • Adapt exercises as needed: Modify exercises to accommodate any physical limitations or joint pain. Work with a qualified fitness professional or physical therapist to develop a safe and effective exercise program.

  • Stay hydrated: Drink plenty of water before, during, and after exercise to prevent dehydration.

  • Take rest days: Allow your body time to recover and avoid overtraining. Rest days are essential for muscle repair and overall well-being.


Conclusion


While exercise can offer numerous benefits for individuals affected by Evans Syndrome, it is crucial to approach it with caution and seek guidance from healthcare professionals. Regular exercise, tailored to individual capabilities and limitations, can contribute to improved cardiovascular health, enhanced mood, increased energy levels, weight management, improved bone health, and enhanced immune function. Remember to start slowly, gradually increase intensity, and listen to your body to ensure a safe and effective exercise routine.


Diseasemaps
2 answers
It depends how severe things are. With low platelets, anything involving too much contact should be avoided. With low haemoglobin, exercise can become physically impossible but it's important to try to keep some muscle strength. When I was bedbound with low platelets and low haemoglobin, I did gentle strengthening exercises in bed, supervised by my physiotherapist. I've still had to relearn the whole walking thing and am working on increasing my strength under physiotherapist supervision. Every week I can do a bit more. I've developed issues with ligaments and tendons from returning to activity but I'm being careful so things are pretty mild. It's important to avoid the boom/bust cycle with activities.

Posted Mar 4, 2017 by Ceara 1000

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