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Can people with Evans Syndrome work? What kind of work can they perform?

See how people with experience in Evans Syndrome give their opinion about whether people with Evans Syndrome can work and what kind of jobs are more appropriated for people with Evans Syndrome

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Can people with Evans Syndrome work?


Evans Syndrome is a rare autoimmune disorder characterized by the simultaneous or sequential development of autoimmune hemolytic anemia (AIHA) and immune thrombocytopenia (ITP). It occurs when the body's immune system mistakenly attacks its own red blood cells and platelets, leading to anemia and low platelet count.


When it comes to the ability to work, it is important to note that Evans Syndrome affects individuals differently. The severity of the condition, the frequency and intensity of flare-ups, as well as the response to treatment, can vary from person to person. Therefore, it is crucial to assess each case individually to determine the impact on an individual's ability to work.


For individuals with mild or well-managed Evans Syndrome, it is often possible to continue working. However, it is essential to consider certain factors:



  1. Medical treatment and management: Effective medical treatment and management play a significant role in enabling individuals with Evans Syndrome to work. This may involve regular monitoring, medication, and potentially immunosuppressive therapies to control the autoimmune response.

  2. Flare-ups and remission: Evans Syndrome can have periods of remission where symptoms are minimal or absent, allowing individuals to work without significant limitations. However, flare-ups can occur, leading to increased fatigue, weakness, and other symptoms that may impact work performance.

  3. Physical limitations: Anemia and low platelet count can cause physical limitations, such as fatigue, shortness of breath, and increased susceptibility to infections. These limitations may affect an individual's ability to perform physically demanding jobs or jobs that require prolonged periods of standing or exertion.

  4. Flexible work arrangements: Depending on the severity and unpredictability of the condition, individuals with Evans Syndrome may benefit from flexible work arrangements. This could include part-time work, modified schedules, or the ability to work from home during flare-ups or medical appointments.

  5. Supportive work environment: A supportive work environment can greatly contribute to the ability of individuals with Evans Syndrome to continue working. Understanding and accommodating employers, colleagues, and supervisors who are aware of the condition can help reduce stress and provide necessary support.


It is important for individuals with Evans Syndrome to communicate openly with their healthcare team and employers about their condition and any limitations they may experience. This allows for appropriate adjustments to be made, ensuring a safe and productive work environment.


While some individuals with Evans Syndrome may be able to work without significant limitations, others may experience more severe symptoms or complications that make it challenging to maintain employment. In such cases, individuals may need to explore disability benefits or other forms of support to ensure their financial stability.


In conclusion, the ability of individuals with Evans Syndrome to work depends on various factors, including the severity of the condition, response to treatment, and individual limitations. With proper medical management, support, and accommodations, many individuals with Evans Syndrome can continue to work and lead fulfilling professional lives.


Diseasemaps
2 answers
Work is possible with Evans, but not during severe relapses. In between relapses people can feel fine. I've been thinking about my options and would prefer to work in a relatively sedentary role because if I have a milder relapse that doesn't send me to hospital, I could maybe continue to work. There are risks with active work with low platelets. Minor blows can cause uncontrolled bleeding so can be career ending for professional sportspersons. The haemolytic anaemia can make physical exertion impossible. Even short walks during a relapse can be out of the question.
The best work should be flexible. I'm very lucky as I work for am extremely supportive employer so can do sedentary duties and work from home while I recover from a severe episode. I work in mental health.

Posted Mar 4, 2017 by Ceara 1000

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My daughter has been fighting her autoimmune illness since she was a baby.  At 4 years of age she was finally hospitalized and the doctor's began researching for answers.  She was an enigma to our team of doctor's. Her illness is similar to Evan's ...
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