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Is it advisable to do exercise when affected by Fabry disease? Which activities would you suggest and how intense should they be?

See if it is advisable for people with Fabry disease to practice sports and which ones are the most recommended if you have Fabry disease

Fabry disease sports

Fabry disease is a rare genetic disorder that affects the body's ability to break down a specific type of fat called globotriaosylceramide (GL-3). This buildup of GL-3 can lead to a wide range of symptoms, including pain, fatigue, kidney problems, and heart complications. While exercise is generally beneficial for overall health and well-being, it is important for individuals with Fabry disease to approach exercise with caution and under the guidance of a healthcare professional.



Benefits of exercise for Fabry disease:



Engaging in regular exercise can have several benefits for individuals with Fabry disease:




  • Improved cardiovascular health: Exercise can help strengthen the heart and improve cardiovascular function, which is particularly important for individuals with Fabry disease who are at an increased risk of heart complications.

  • Increased energy levels: Regular physical activity can help combat fatigue, a common symptom of Fabry disease.

  • Enhanced muscle strength and flexibility: Exercise can help improve muscle strength and flexibility, which can be beneficial for individuals experiencing muscle pain and stiffness.

  • Weight management: Maintaining a healthy weight is important for managing Fabry disease, and exercise can help with weight management.

  • Improved mental well-being: Exercise has been shown to have positive effects on mental health, including reducing stress and improving mood.



Types of exercise:



When it comes to exercise for individuals with Fabry disease, it is important to focus on activities that are low-impact and do not put excessive strain on the body. Some suitable types of exercise include:




  • Aerobic exercises: Low-impact aerobic exercises such as walking, swimming, and cycling can help improve cardiovascular health without putting excessive stress on the joints.

  • Strength training: Light to moderate strength training exercises using resistance bands or light weights can help improve muscle strength and flexibility.

  • Flexibility exercises: Stretching exercises and activities such as yoga or Pilates can help improve flexibility and reduce muscle stiffness.

  • Balance exercises: Balance exercises, such as tai chi, can help improve stability and reduce the risk of falls.



Exercise intensity:



The intensity of exercise for individuals with Fabry disease should be tailored to their individual capabilities and guided by a healthcare professional. It is important to start slowly and gradually increase the intensity and duration of exercise over time. Listening to the body and avoiding overexertion is crucial. If any symptoms worsen or new symptoms arise during exercise, it is important to stop and consult a healthcare professional.



Precautions and considerations:



While exercise can be beneficial for individuals with Fabry disease, there are some precautions and considerations to keep in mind:




  • Consult a healthcare professional: Before starting any exercise program, it is important to consult with a healthcare professional who is familiar with Fabry disease and can provide personalized guidance.

  • Monitor symptoms: Pay attention to how the body responds to exercise and adjust the intensity or type of exercise accordingly. If symptoms worsen or new symptoms arise, it is important to seek medical advice.

  • Avoid extreme temperatures: Individuals with Fabry disease may have difficulty regulating body temperature, so it is important to avoid exercising in extreme heat or cold.

  • Stay hydrated: Drink plenty of water before, during, and after exercise to stay hydrated.

  • Listen to your body: If the body is fatigued or experiencing pain, it is important to rest and allow for adequate recovery.



Conclusion:



Exercise can be beneficial for individuals with Fabry disease, but it is important to approach it with caution and under the guidance of a healthcare professional. Low-impact aerobic exercises, strength training, flexibility exercises, and balance exercises are suitable choices. The intensity of exercise should be tailored to individual capabilities, and it is important to listen to the body and avoid overexertion. By incorporating exercise into a well-rounded management plan, individuals with Fabry disease can potentially improve their cardiovascular health, increase energy levels, enhance muscle strength and flexibility, manage weight, and improve overall well-being.


Diseasemaps
3 answers
Since my Fabry Disease has caused hypohidrosis (I don't sweat enough) the best exercise I can think to get is to swim laps. My cardiologist says I have to exercise at least 3 times per week for at least 30 minutes since my heart is a use it or lose it muscle.

Be sure to exercise enough to get your heart rate elevated but not so much as to need medical assistance. Only swim with a lifeguard on duty and make others aware if you are experiencing any distress.

Warning: I am not a doctor and these statements are anecdotal and as such you should consult with your physician(s) prior to accepting any statement herein.

Posted Jul 1, 2020 by Fabry Father 1100
Translated from spanish Improve translation
Always advisable, within the possibilities of each one.
I walk and before it was something of a gym, to tone the muscles especially of the back, to combat neck pain.

Posted Aug 27, 2017 by RAFA 300

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