Hi. In May 2011, after a 10 day stay at a local hospital that started on Mother's Day where it was first thought that I had an appendicitis I went home with the results of a scope that found cancer in my decending colon and waiting for the result o...
I found out at the age of 31 yrs that I had FAP, I was adopted and did not know about the disease in my birth dads family. I was not given a good out come after surgery but weeks afterwards the biopsies came in and there was no cancer, we all were so...
Hi, all! So first of all, I found the link to this map here: A Facebook FAP group! There are tons of online resources for us. I especially love j-pouch.org, which has its own FAP section and a MASSIVE forum for you to rant, get advice, ask about do...
24 people with Familial Adenomatous Polyposis have taken the SF36 survey. Mean of Familial Adenomatous Polyposis is 1999 points (56 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey