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Living with Familial Adenomatous Polyposis. How to live with Familial Adenomatous Polyposis?

Can you be happy living with Familial Adenomatous Polyposis? What do you have to do to be happy with Familial Adenomatous Polyposis? Living with Familial Adenomatous Polyposis can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Familial Adenomatous Polyposis

Living with Familial Adenomatous Polyposis

Living with Familial Adenomatous Polyposis (FAP)


Familial Adenomatous Polyposis (FAP) is a hereditary condition characterized by the development of numerous polyps in the colon and rectum. While living with FAP can present challenges, there are strategies and lifestyle adjustments that can help individuals manage the condition effectively.



1. Regular medical check-ups: It is crucial for individuals with FAP to have regular check-ups with their healthcare provider. These check-ups may include colonoscopies, genetic testing, and other screenings to monitor the development of polyps and detect any signs of cancer at an early stage.



2. Surgical interventions: In many cases, individuals with FAP may undergo prophylactic surgery to remove the colon and rectum. This procedure, known as a colectomy, significantly reduces the risk of developing colorectal cancer. It is important to discuss surgical options with a healthcare professional to determine the most appropriate course of action.



3. Healthy diet: Maintaining a healthy diet is essential for managing FAP. A diet rich in fruits, vegetables, whole grains, and lean proteins can help support overall health and reduce the risk of complications. It is advisable to limit the consumption of processed foods, red meat, and foods high in saturated fats.



4. Regular exercise: Engaging in regular physical activity can have numerous benefits for individuals with FAP. Exercise helps maintain a healthy weight, improves digestion, and reduces the risk of developing other health conditions. Consult with a healthcare professional to determine the most suitable exercise routine.



5. Emotional support: Living with FAP can be emotionally challenging. Seeking emotional support from friends, family, or support groups can provide a valuable outlet for sharing experiences, concerns, and coping strategies. Connecting with others who have FAP can offer a sense of community and understanding.



6. Genetic counseling: Genetic counseling can be beneficial for individuals with FAP and their families. It provides information about the condition, inheritance patterns, and available options for managing the risk of passing FAP to future generations. Genetic counselors can offer guidance and support in making informed decisions.



7. Regular monitoring: Individuals with FAP should adhere to a schedule of regular monitoring and follow-up appointments with their healthcare provider. This ensures that any changes or developments in the condition can be promptly addressed and managed.



8. Stay informed: Keeping up-to-date with the latest research, treatment options, and advancements in managing FAP can empower individuals to make informed decisions about their health. Reliable sources such as medical journals, reputable websites, and healthcare professionals can provide valuable information.



Conclusion: While living with Familial Adenomatous Polyposis can present challenges, adopting a proactive approach to managing the condition can significantly improve outcomes. Regular medical check-ups, surgical interventions when necessary, a healthy diet, regular exercise, emotional support, genetic counseling, and staying informed are all important aspects of living well with FAP.


Diseasemaps
5 answers
yes

Posted May 18, 2017 by Holly 2000
Improvise, Adapt and Overcome

Posted May 19, 2017 by Daniel 2570
I feel like I am as happy as the people around me that don't suffer from polyposis. The only things that I have seen cause stress are the colonoscopies every year, the surgery to remove the colon and the chance that the gene mutation will pass on to children. Other than that, my family and I love totally normal lives.

Posted Sep 28, 2017 by Jennifer 1600
Yes you can! Your perspective on life and keeping a positive attitude is something that you can control. God gave us free will to chose our actions. Chose to be happy!!

Posted Sep 29, 2017 by ChristiDarty 1300

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Hi.  In May 2011, after a 10 day stay at a local hospital that started on Mother's Day where it was first thought that I had an appendicitis I went home with the results of a scope that found cancer in my decending colon and waiting for the result o...
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Hi, all! So first of all, I found the link to this map here: https://www.facebook.com/groups/257034824414129/ There are tons of online resources for us. I especially love j-pouch.org, which has its own FAP section and a MASSIVE forum for you to ran...
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What mediciations or therapies have you found that are successful in limiting or reducing the growth of polyps?

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