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What are the best treatments for Familial Adenomatous Polyposis?

See the best treatments for Familial Adenomatous Polyposis here

Familial Adenomatous Polyposis treatments

Treatments for Familial Adenomatous Polyposis (FAP)


Familial Adenomatous Polyposis (FAP) is a rare genetic disorder characterized by the development of numerous polyps in the colon and rectum. If left untreated, these polyps can progress to colorectal cancer. Therefore, early diagnosis and appropriate treatment are crucial in managing FAP. While there is no cure for FAP, several treatment options can help control the condition and reduce the risk of cancer.



1. Surveillance and Monitoring


Regular surveillance is essential for individuals with FAP. This involves periodic colonoscopies to detect and remove polyps before they become cancerous. The frequency of surveillance depends on the individual's age and the severity of the condition. In some cases, genetic testing may be recommended to identify FAP at an early stage.



2. Medications


Nonsteroidal anti-inflammatory drugs (NSAIDs) such as aspirin and celecoxib have shown promise in reducing the number and size of polyps in FAP patients. However, the long-term effects and risks associated with these medications are still being studied, so their use should be discussed with a healthcare professional.



3. Colectomy


Colectomy, the surgical removal of the colon, is often recommended for individuals with FAP. This procedure eliminates the risk of colorectal cancer by removing the polyps. There are two main types of colectomy:



  • Total colectomy: In this procedure, the entire colon is removed.

  • Prophylactic colectomy: This involves removing the colon before cancer develops, usually when a significant number of polyps are present.


After colectomy, the surgeon may create an ileal pouch-anal anastomosis (IPAA) or a permanent ileostomy to restore bowel function.



4. Medications for Adjuvant Therapy


Following colectomy, individuals with FAP may be prescribed adjuvant therapy to further reduce the risk of polyp regrowth. Medications such as sulindac and celecoxib may be used in combination with surveillance to prevent the formation of new polyps.



5. Genetic Counseling and Testing


Genetic counseling is recommended for individuals with FAP and their families. Genetic testing can help identify the specific gene mutation responsible for FAP and determine the risk of passing it on to future generations. This information can guide family planning decisions and enable early detection and intervention.



6. Psychological Support


Living with FAP can be emotionally challenging. Therefore, psychological support is an important aspect of treatment. Support groups, counseling, and therapy can help individuals and their families cope with the impact of FAP on their lives.



It is important to note that treatment plans may vary depending on individual circumstances, and it is essential to consult with healthcare professionals experienced in managing FAP to determine the most appropriate course of action.


Diseasemaps
8 answers
sulindac, tumeric with black pepper and quceritine

Posted May 18, 2017 by Holly 2000
Total proctocolectomy w/Ileostomy surgery

Posted May 19, 2017 by Daniel 2570
So I think that the best tretman for FAP is remove all colon and construction J pouch with temporary ileostomy.
The temporary ileostomy is very important for first two-five mounth.

Posted May 19, 2017 by Amina 200
Going in for yearly scopes and colonoscopies. Taking Sulindac

Posted May 29, 2017 by Mechelle 300
Surgery yas to be the best treatment. Excise the area. Surveillance is another treatment of a kind. Some people are finding success through medications such as Sulindac and other aspirin type medicines which are now shown to work on the polyps

Posted Sep 9, 2017 by Beverley 500
Diets with low fat and high fiber help significantly to keep IBS and polyps at a minimum. Having surgery to remove part or all of the colon also reduces risk of polyps and cancer.

Posted Sep 28, 2017 by Jennifer 1600
Well they start with a total coloectomy.

Posted Sep 29, 2017 by ChristiDarty 1300

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FAMILIAL ADENOMATOUS POLYPOSIS STORIES
Familial Adenomatous Polyposis stories
Hi.  In May 2011, after a 10 day stay at a local hospital that started on Mother's Day where it was first thought that I had an appendicitis I went home with the results of a scope that found cancer in my decending colon and waiting for the result o...
Familial Adenomatous Polyposis stories
I found out at the age of 31 yrs that I had FAP, I was adopted and did not know about the disease in my birth dads family. I was not given a good out come after surgery but weeks afterwards the biopsies came in and there was no cancer, we all were so...
Familial Adenomatous Polyposis stories
Hi, all! So first of all, I found the link to this map here: https://www.facebook.com/groups/257034824414129/ There are tons of online resources for us. I especially love j-pouch.org, which has its own FAP section and a MASSIVE forum for you to ran...
Familial Adenomatous Polyposis stories
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Familial Adenomatous Polyposis stories

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What mediciations or therapies have you found that are successful in limiting or reducing the growth of polyps?

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