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Living with Fanconi Anemia. How to live with Fanconi Anemia?

Can you be happy living with Fanconi Anemia? What do you have to do to be happy with Fanconi Anemia? Living with Fanconi Anemia can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Fanconi Anemia

Living with Fanconi Anemia
Diseasemaps
5 answers
Live life the way you want to. We all do. We all try our best to be as normal as possible. We all make mistakes and we learn from those mistakes just like any other human being. Try not to let Fanconi Anemia rule/ruin your life. You have choices, choices only you can make. Be a rebel every now and again. Keep your doctor's in the loop, don't lie to them.

Posted Mar 28, 2017 by Jacy 1170
It can be difficult, however, it is manageable. Lots of support and care from those around you. An outlet when it is needed. Yes you sure can it's all in your state of mind.

Posted Sep 22, 2017 by Jo 1920
Pluk de dag, hang zelf de slingers op, haal het beste er uit wat er in zit. en probeer met zo min mogelijk zorgen te leven.

Posted Sep 22, 2017 by Barbara 2670
Translated from spanish Improve translation
I recommend a book that tells the experience of four people with this disease, so that anyone can know, selling on Amazon:

https://www.amazon.es/ANEMIA-FANCONI-EXPERIENCIA-ENFERMEDAD-RARA/dp/1521487286/ref=sr_1_1?ie=UTF8&qid=1500408965&sr=8-1&keywords=anemia+de+fanconi

Posted Jul 18, 2017 by Elisabet 1900

Living with Fanconi Anemia

Fanconi Anemia life expectancy

What is the life expectancy of someone with Fanconi Anemia?

7 answers
Celebrities with Fanconi Anemia

Celebrities with Fanconi Anemia

1 answer
Is Fanconi Anemia hereditary?

Is Fanconi Anemia hereditary?

5 answers
Is Fanconi Anemia contagious?

Is Fanconi Anemia contagious?

5 answers
Natural treatment of Fanconi Anemia

Is there any natural treatment for Fanconi Anemia?

4 answers
ICD9 and ICD10 codes of Fanconi Anemia

ICD10 code of Fanconi Anemia and ICD9 code

5 answers
Fanconi Anemia diet

Fanconi Anemia diet. Is there a diet which improves the quality of life of ...

4 answers
History of Fanconi Anemia

What is the history of Fanconi Anemia?

4 answers

World map of Fanconi Anemia

Find people with Fanconi Anemia through the map. Connect with them and share experiences. Join the Fanconi Anemia community.

Stories of Fanconi Anemia

FANCONI ANEMIA STORIES
Fanconi Anemia stories
UNRELATED DONOR 9/10 MATCH SEPTEMBER 2012  BONE MARROW TRANSPLANT AT ST. MARY'S HOSPITAL PADDINGTON, LONDON  Hypogammaglobulinaemia I help with the UK charity called Fanconi Hope DIAGNOSED IN 2007 AT SOUTHAMPTON GENERAL HOSPITAL  4...
Fanconi Anemia stories
I have Fanconi Anemia, it doesn't have me.  
Fanconi Anemia stories
Raymond was born in April and weighed only 3 lbs. We knew before he was ever born that he was special.   Missing both radius bones and both his thumbs we didn't know what was wrong. Then he had a double bubble in his tummy. So at 3 days old he had h...
Fanconi Anemia stories
Born in 1998, dx at 2.5 yr old with Fanconi Anemia. Multiple deformaties, too high risk for bmt. Bone marrow failure at 9 yr old, tranfusion dependent for 3.5 years.  Developed MDS and a year later developed Leukemia, markers for both AML and ALL!...
Fanconi Anemia stories
My name is Jacy Louise Box. I was born 11/08/1991. I was born with an extra thumb on my right hand (surgically removed) when I was an infant. My left hand had no ligament (had surgery). I was born with a cleft palate (I've had plenty of surgeries on ...

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Fanconi Anemia forum

FANCONI ANEMIA FORUM
Fanconi Anemia forum
Hello, I am working on Famconi anemia in Pakistan. The MPhil project of our team identified four novel mutations in Pakistani patients. My aim is to work more here on Fanconi anemia so want to have a proper platform and international friends to guid...

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