Is it advisable to do exercise when affected by Febrile infection-related epilepsy syndrome - FIRES? Which activities would you suggest and how intense should they be?

Exercise Recommendations for Febrile Infection-Related Epilepsy Syndrome (FIRES)

Febrile Infection-Related Epilepsy Syndrome (FIRES) is a rare and severe form of epilepsy that typically affects children and young adults. It is characterized by prolonged seizures that occur during or after a febrile illness. Managing FIRES involves a comprehensive approach, including medical treatment, supportive care, and lifestyle modifications. While exercise is generally beneficial for overall health, it is important to consider the specific needs and limitations of individuals with FIRES.

Consultation with a Healthcare Professional

Before engaging in any exercise program, it is crucial to consult with a healthcare professional, such as a neurologist or epileptologist, who is familiar with the individual's medical history and condition. They can provide personalized recommendations based on the severity of FIRES, seizure control, and overall health status.

Low-Impact Aerobic Activities

Low-impact aerobic activities are generally well-tolerated and can be beneficial for individuals with FIRES. These activities promote cardiovascular fitness, muscle strength, and overall well-being. Some suitable low-impact exercises include:

• Walking: Walking is a low-impact exercise that can be easily modified to suit individual fitness levels. It can be done outdoors or on a treadmill.


• Swimming: Swimming is a non-weight bearing exercise that provides a full-body workout. It is gentle on the joints and can help improve cardiovascular fitness.


• Cycling: Cycling, whether on a stationary bike or outdoors, is a low-impact exercise that can be adjusted to the desired intensity. It helps strengthen leg muscles and improves cardiovascular health.


• Yoga: Yoga combines gentle movements, stretching, and deep breathing exercises. It can help improve flexibility, balance, and relaxation.

Strength Training

Strength training exercises can be beneficial for individuals with FIRES, as they help build muscle strength and improve overall physical function. However, it is important to start with light weights and focus on proper form to minimize the risk of injury. Some suitable strength training exercises include:

• Bodyweight exercises: Exercises such as squats, lunges, push-ups, and planks can be performed using one's body weight as resistance.


• Resistance bands: Resistance bands provide a safe and effective way to strengthen muscles without the need for heavy weights. They can be used for various exercises targeting different muscle groups.


• Light dumbbells: Using light dumbbells, individuals can perform exercises such as bicep curls, shoulder presses, and tricep extensions.

Exercise Intensity

The intensity of exercise for individuals with FIRES should be determined on an individual basis, considering factors such as seizure control, overall health, and physical abilities. It is generally recommended to start with low to moderate intensity exercises and gradually increase the intensity as tolerated. Monitoring heart rate during exercise can be helpful in ensuring that the intensity remains within a safe range.

Exercise Precautions

While exercise can be beneficial, certain precautions should be taken for individuals with FIRES:

• Avoid overheating: Individuals with FIRES may be more susceptible to overheating, which can potentially trigger seizures. It is important to exercise in a cool environment, stay hydrated, and take breaks as needed.


• Ensure safety: Exercise should be performed in a safe environment, free from potential hazards. If seizures are not well-controlled, it may be advisable to exercise with a partner or under supervision.


• Listen to the body: It is important to pay attention to any signs of fatigue, discomfort, or increased seizure activity during or after exercise. If any concerning symptoms arise, it is recommended to consult with a healthcare professional.

Disclaimer: The information provided here is for general informational purposes only and should not be considered as medical advice. It is important to consult with a healthcare professional for personalized recommendations based on individual circumstances.