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Febrile infection-related epilepsy syndrome - FIRES prognosis

What is the prognosis if you have Febrile infection-related epilepsy syndrome - FIRES? Quality of life, limitations and expectatios of someone with Febrile infection-related epilepsy syndrome - FIRES.

Febrile infection-related epilepsy syndrome - FIRES prognosis

Febrile infection-related epilepsy syndrome (FIRES) is a rare and severe form of epilepsy that typically affects previously healthy children and young adults. It is characterized by the sudden onset of prolonged seizures, often following a febrile illness. The exact cause of FIRES is unknown, but it is believed to be triggered by an immune response to an infection.



FIRES is a devastating condition with a high morbidity and mortality rate. The seizures associated with FIRES are often resistant to treatment and can lead to significant neurological impairment. The prognosis for individuals with FIRES is generally poor, with many experiencing ongoing seizures and cognitive decline.



Treatment for FIRES typically involves a combination of antiepileptic drugs, immunotherapy, and supportive care. However, these interventions are often ineffective in controlling the seizures and preventing long-term complications. The management of FIRES requires a multidisciplinary approach, involving neurologists, epileptologists, and other specialists.



Research into FIRES is ongoing, with the aim of better understanding the underlying mechanisms and developing more effective treatments. However, due to the rarity and complexity of the condition, progress has been limited.



It is important for individuals with FIRES and their families to receive comprehensive support and care. This may include access to specialized medical services, educational support, and psychological counseling. The impact of FIRES on quality of life can be profound, and a holistic approach to management is essential.



In conclusion, FIRES is a rare and severe form of epilepsy that presents significant challenges in terms of diagnosis and treatment. The prognosis for individuals with FIRES is generally poor, with ongoing seizures and cognitive decline being common. Ongoing research and comprehensive support are crucial in improving outcomes for those affected by this devastating condition.


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2 answers
It's very poor. Around 82% of patients have permanent intellectual disability ranging from mild to a severe state.

Posted Jun 21, 2022 by Carla 4020

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World map of Febrile infection-related epilepsy syndrome - FIRES

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Stories of Febrile infection-related epilepsy syndrome - FIRES

FEBRILE INFECTION-RELATED EPILEPSY SYNDROME - FIRES STORIES
Febrile infection-related epilepsy syndrome - FIRES stories
Isa was a completely healthy baby girl, with a normal development till she was 10 months old, when she had fever for the first time. It was a high fever, almost 40º Celsius. she went to hospital Emergency unit to control the fever. 2 days after, she...
Febrile infection-related epilepsy syndrome - FIRES stories
Estando perfectamente bien de salud (la niña andaba bien comia de todo rara vez se ponia enferma, hablaba perfectamente) y con 2,5 años de edad sufrio su primera crisis. Tres dias anteriores habia sufrido una leve infeccion de garganta y le dio fie...
Febrile infection-related epilepsy syndrome - FIRES stories
Sam was a happy 5 yo boy. 1st year at school , was a sport loving little cheeky kid in late July had a fever for a few days and went to school for 2 days Thursday Friday. on Saturday Sam had his 1st seizure about 1pm and from there the snowball gai...
Febrile infection-related epilepsy syndrome - FIRES stories
6 years old male, over two month in Status Epileptikus
Febrile infection-related epilepsy syndrome - FIRES stories
My Son got FIRES 2 yrs ago when we were in Melbourne Australia, Due to my husband finished his study. Now we are back to Indonesia and ITS so hard to find SUPPORT for Him even some of HIS ,Meds we need to Import from Melb because some of them not ava...

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