A Fibromuscular dysplasia interview , Dupuytrens Contracture.

Terri's interview


How did all start?

In the bathtub getting a bath i started tiggleing in my toes & fingers. It moved to my lips and then I started drawing in and couldn't speak clearly like a stroke

Do you already have a diagnosis? How long did it take you to get it?

Yes about 3-4 months. Had to go to the Cleveland Clinic.

For what medical specialties have you been treated? What has been the most useful specialty for your?

Nerology

What has been the most useful thing for you so far?

S doctor that listens

What have been your biggest difficulties?

The episodes that are just like the initial disection

How has your social and family environment reacted? Have your social or family relationships changed?

Everyone was very supportive and still.is

What things have you stopped doing?

Painting ceiling vs or anything that extends my neck for long periods

What do you think about the future?

I'm not sure. I'm afraid

So far, which years have been the best years in your life? What have you done during them?

My 20's & 30's. Had 3 healthy boys

What would you like to do if you didn’t have your condition?

Scuba dive. Not be worried everyone my fingers or toes tingle

If you had to describe your life in a sentence, what would it be?

Live to the fullest enjoy your family & friends to the fullsst

Finally, what advice would you give to a person in a similar situation?

Try not to stress or panic. Rest & take me time


Sep 13, 2018

By: Terri

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