A Fibromyalgia interview , Psoriasis.

Jamie's interview


How did all start?

Reconstructive foot surgery. I had an allergic reaction to the internal stitches. It took over 6 months for the incision to finally close up and heal. I never really recovered from that. Then thyroid cancer to lymphoma.

Do you already have a diagnosis? How long did it take you to get it?

Never got the diagnosis until a dr just guessed it was what I had.

For what medical specialties have you been treated? What has been the most useful specialty for your?

Primary care, diagnostition, endocrinologist, oncologists, virologist,psychiatrist, psychologist None are good seperate. I make sure they have all the info together to rules things out. But my primary care Dr. He has my back. Every thing I am to take or change I show him first so there isn't a mix up or medication interaction or overlook by the others

What has been the most useful thing for you so far?

Getting rid of Dr's who don't listen to me

What have been your biggest difficulties?

I had a rheumatologist treating me for fibromyalgia and she didn't even believe it is real. I didn't know that but it sure explains her treatment

How has your social and family environment reacted? Have your social or family relationships changed?

No social life now. I have severe anxiety and have become mostly agoraphobia.

What things have you stopped doing?

Living. All I do is survive now

What do you think about the future?

Nothing.

So far, which years have been the best years in your life? What have you done during them?

Pre cancer years were the best I was so active and worked 60 or more hrs a week and always did things with the kids kept up the property the house and the animal's

What would you like to do if you didn’t have your condition?

Wild animal rehabilitation

If you had to describe your life in a sentence, what would it be?

It's a bumpy road with pot holes but the sun still rises every day

Finally, what advice would you give to a person in a similar situation?

Never Stop Don't let it win.


Oct 22, 2017

By: Jamie

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