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Which are the symptoms of Fibrous Dysplasia?

See the worst symptoms of affected by Fibrous Dysplasia here

Fibrous Dysplasia symptoms

Symptoms of Fibrous Dysplasia


Fibrous dysplasia is a rare bone disorder that primarily affects the growth and development of bones. It is characterized by the abnormal growth of fibrous tissue in place of normal bone, leading to weakened and deformed bones. The symptoms of fibrous dysplasia can vary widely depending on the location and extent of the disease. Here are some common symptoms associated with fibrous dysplasia:



Pain and Discomfort


One of the most common symptoms of fibrous dysplasia is pain and discomfort in the affected bones. The pain can range from mild to severe and may be intermittent or constant. It is often described as a dull, aching pain that worsens with physical activity or pressure on the affected area.



Bone Deformities


Fibrous dysplasia can cause bone deformities, particularly in the long bones of the arms and legs. These deformities can lead to uneven limb lengths, bowing of the bones, or curvature of the spine. In severe cases, the bones may become weak and prone to fractures.



Visible Swelling or Masses


In some cases, fibrous dysplasia can cause visible swelling or masses on the affected bones. These swellings, known as bone tumors or lesions, may be palpable and can cause cosmetic concerns. The size and location of the tumors can vary, and they may grow slowly over time.



Fractures


Due to the weakened and structurally abnormal bones, individuals with fibrous dysplasia are at an increased risk of fractures. Even minor trauma or stress on the affected bones can lead to fractures. Fractures may cause sudden pain, swelling, and limited mobility in the affected area.



Functional Impairment


Fibrous dysplasia can affect the normal functioning of bones and joints, leading to functional impairment. This can manifest as limited range of motion, difficulty in performing daily activities, and reduced strength in the affected limbs. Functional impairment can significantly impact an individual's quality of life.



Endocrine Abnormalities


In some cases, fibrous dysplasia may be associated with endocrine abnormalities. This can include early onset of puberty, hormonal imbalances, and abnormalities in the production of certain hormones. These endocrine abnormalities may require additional medical management and monitoring.



Vision or Hearing Problems


In rare instances, fibrous dysplasia can affect the bones of the skull, leading to vision or hearing problems. This can occur if the abnormal bone growth affects the structures responsible for vision or hearing. Symptoms may include vision loss, double vision, hearing loss, or ringing in the ears.



Other Associated Conditions


Fibrous dysplasia is sometimes associated with other conditions, such as McCune-Albright syndrome. This syndrome can cause additional symptoms like skin pigmentation abnormalities, hormonal imbalances, and early-onset puberty. It is important to note that not all individuals with fibrous dysplasia will have these associated conditions.



If you or someone you know is experiencing any of these symptoms, it is important to consult with a healthcare professional for a proper diagnosis and appropriate management. Treatment options for fibrous dysplasia may include medication to manage pain, physical therapy to improve mobility, and in some cases, surgical interventions to stabilize or correct bone deformities.


Diseasemaps
10 answers
Pain
Sleeplessness
Agitation
Anxiety

Posted May 22, 2017 by Angie 1100
The Pain is the worst symptom of fibrous Dysplasia

Posted Jun 9, 2017 by Lisa Hill 2050
Bone pain, bones breaking

Posted Jul 21, 2017 by Debra 2000
Disability secondary to growth and pain

Posted Sep 9, 2017 by Debby 1200
Being tired a lot and the pain

Posted Oct 7, 2017 by Kiesha brown 3050
For me it started of with pain in my ears face and sinuses. If you get swelling in the jaw or ears then that is another symptom. The pain is unbearable and tends to happen at night but may be in daytime too. It also depends where you have it I have it in my skull.

Posted Jan 24, 2020 by Jacquie goosetree 1300
My FD is mostly in my skull and legs, and I was later diagnosed with scoliosis. I want to get rid first of scoliosis because it made me stay in my height, which is for a kid honestly. My FD affected almost all of my physical activities. Early accidents caused my parents and doctors to prohibit me to do a lot of things such as playing sports. I also need to be careful at all times because I already had fractures in my legs and already had some issues with my skull. It made me used to headaches that sometimes it's quite a miracle to not have one in a day or week. Walk and some moving is all I can do as an exercise, and I can easily be tired. At least I can walk, right? Body pains also, especially in cold times.

Posted Oct 23, 2020 by anna_d09 2500
Pain, limp, hurts to put pressure on leg, can’t lift leg

Posted Jan 17, 2021 by Emmy 2250
Translated from portuguese Improve translation
I believe that the worst symptoms are the pain and the limitation that the dysplasia can cause to the wearer, particularly when located in the lower limbs.
When she is not present in the head, in addition to the pain also have the question of aesthetics.

Posted Jun 10, 2017 by Pietro Buono 300

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FIBROUS DYSPLASIA STORIES
Fibrous Dysplasia stories
HELLO, MY NAME IS MICHELLE, i AM 37, MY BODY HAS A LONG LIST OF UNIQUE AILMENTS. i BELIEVE MANY STEM FROM MY HAVING mCcUNE ALBRIGHT SYNDROME. i ALSO HAVE  FIBROUS DYSPLASIA IN MANY BONES IN MY SKUL AND SUSPECT IN MY ANKLE AND SOME RIBS, i HAVE SCOLI...
Fibrous Dysplasia stories
I was diagnosed when I was in the 6th grade.  It was my birthday when they did the x-ray.  They sent me to the Oncologist to confirm it was FD and not cancer.  I have FD in my Left Tibia.  As of now, I have had 11 surgeries outpatient and inpatie...
Fibrous Dysplasia stories
After suffering with chronic pain for almost 2 years I finally got a diagnosis of Fibrous Dysplasia of the skull. I have a very large lesion in the back of head that goes all the way across the occipital bone. Doctor explained that it wraps around my...
Fibrous Dysplasia stories
Hi all. I've joined this map but it's my son who has PFD. Found out when his leg broke at age 8. Long hard struggle ever since but knowing we're not alone has made it easier. Daniel is soon 12 & struggling at secondary school but has some fab friends...
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Fibrous Dysplasia forum

FIBROUS DYSPLASIA FORUM
Fibrous Dysplasia forum
I was wondering if there was a spot to clarify the type of FD we have.  There is monostotic, polyostotic and McCune-Albright syndrome with polyostotic (which i have) ?  I did not see McCune-Albright syndrome on the list. 

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