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What are the best treatments for Fibrous Dysplasia?

See the best treatments for Fibrous Dysplasia here

Fibrous Dysplasia treatments

Treatments for Fibrous Dysplasia


Fibrous dysplasia is a rare bone disorder that primarily affects children and young adults. It is characterized by the abnormal growth of fibrous tissue in place of normal bone, leading to weakened and deformed bones. While there is no cure for fibrous dysplasia, several treatment options can help manage the symptoms and improve the quality of life for individuals with this condition.



1. Medications


Medications can be used to alleviate pain and reduce bone loss in fibrous dysplasia. Bisphosphonates are commonly prescribed to slow down bone resorption and strengthen the affected bones. These medications work by inhibiting the activity of cells that break down bone tissue. Calcium and vitamin D supplements may also be recommended to support bone health.



2. Surgery


Surgery is often considered for individuals with fibrous dysplasia who experience severe pain, bone deformities, or fractures. The specific surgical procedures depend on the location and extent of the disease. Curettage is a common surgical technique that involves scraping out the abnormal tissue and filling the cavity with bone grafts or other materials to promote healing and bone stability. In some cases, osteotomy may be performed to correct bone deformities and improve function.



3. Physical Therapy


Physical therapy plays a crucial role in managing fibrous dysplasia. It focuses on improving mobility, strength, and flexibility of the affected bones and joints. A physical therapist can design a personalized exercise program to address specific limitations and help individuals regain or maintain their functional abilities. Physical therapy can also help relieve pain and prevent further complications.



4. Pain Management


Chronic pain is a common symptom of fibrous dysplasia. Various pain management techniques can be employed to alleviate discomfort and improve the overall well-being of individuals with this condition. Nonsteroidal anti-inflammatory drugs (NSAIDs) may be prescribed to reduce pain and inflammation. Additionally, nerve blocks or local anesthetic injections can provide temporary relief for localized pain.



5. Supportive Care


Supportive care is essential for individuals with fibrous dysplasia to cope with the physical and emotional challenges associated with the condition. This may include psychological counseling to address anxiety or depression, assistive devices to improve mobility and independence, and educational support to help individuals and their families understand the disease and manage its impact on daily life.



6. Regular Monitoring


Regular monitoring is crucial to assess the progression of fibrous dysplasia and detect any potential complications. This typically involves periodic imaging studies, such as X-rays, CT scans, or bone scans, to evaluate bone density, identify fractures, and monitor the response to treatment. Close collaboration between the individual, their healthcare team, and specialists in bone disorders is essential for effective management.



It is important to note that treatment approaches may vary depending on the individual's age, overall health, and the severity of the disease. Therefore, it is crucial to consult with a healthcare professional to determine the most appropriate treatment plan for fibrous dysplasia.


Diseasemaps
9 answers
Individual treatments for each person. If you calm yourself by breathing through the pain sometimes a bath or shower can help. Different days mean heat or cold can help. My tens unit will sometimes help. There is nothing that helps consistently.

Posted May 22, 2017 by Angie 1100
Although there is no specific medical therapy for fibrous dysplasia, studies have shown decreased pain after treatment with bisphosphonates, which inhibit bone resorption by virtue of their action on osteoclasts. The most common drug therapy is intravenous (IV) pamidronate.

Posted Jun 9, 2017 by Lisa Hill 2050
None..cold packs, heat for pain

Posted Jul 21, 2017 by Debra 2000
Pain relief options using as many non narcotic options prior to narcotic with surgery as last option to be used only to preserve function

Posted Sep 9, 2017 by Debby 1200
Their is no cure for fibrous dysplasia, however you can have surgery for it, the surgery might or might not work depending on the person it can make it better or worse. Another treatment can be pain medicine that is prescribed by your doctor

Posted Oct 7, 2017 by Kiesha brown 3050
I believe surgery and therapy, and some pain meds. My family doesn't have that much money for my treatment though, but pain meds help a lot, especially in colder times when I experience random body pain or when I need to do something tiring.

Posted Oct 23, 2020 by anna_d09 2500
Surgery if you have a tumor. I didn’t receive much treatment since not much is known about this disease

Posted Jan 17, 2021 by Emmy 2250
Translated from portuguese Improve translation
Has no cure, but the bifosfanatos help reduce the pain.

Posted Jun 10, 2017 by Pietro Buono 300

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HELLO, MY NAME IS MICHELLE, i AM 37, MY BODY HAS A LONG LIST OF UNIQUE AILMENTS. i BELIEVE MANY STEM FROM MY HAVING mCcUNE ALBRIGHT SYNDROME. i ALSO HAVE  FIBROUS DYSPLASIA IN MANY BONES IN MY SKUL AND SUSPECT IN MY ANKLE AND SOME RIBS, i HAVE SCOLI...
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After suffering with chronic pain for almost 2 years I finally got a diagnosis of Fibrous Dysplasia of the skull. I have a very large lesion in the back of head that goes all the way across the occipital bone. Doctor explained that it wraps around my...
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Fibrous Dysplasia forum

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Fibrous Dysplasia forum
I was wondering if there was a spot to clarify the type of FD we have.  There is monostotic, polyostotic and McCune-Albright syndrome with polyostotic (which i have) ?  I did not see McCune-Albright syndrome on the list. 

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