I am Quanh, 21 years old. I didn't discover Freeman Syndrome until genetic test this year 2021. I really would like to reach our to other people, how do they deal with life and hearing advices from others.
Good luck with your journey. Below is my picture taken in long time ago. Now I am first year college student.
you can contact me through FB:
https://www.facebook.com/quanganh.bui.197